Connect with others who understand.

sign up log in
Resources
About MyMSTeam

Your Answers: The Worst MS Advice (Infographic)

Updated on November 13, 2016

We asked and you answered! We posted this question: "What bits of 'advice' do you wish people would stop telling you?" and hundreds of you took the time to respond.

What did we learn? From the unconcerned ("You should get out more") to the plain unhelpful ("But you look fine"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • You should get out more
  • Just push through it
  • You don’t look disabled
  • Everyone gets tired sometimes
  • Have you tried vitamins?
  • You should go back to work
  • But you look fine
  • Just move around more

Everyone's situation is different and not all of these apply to each person. Tell us: What advice about multiple sclerosis do YOU wish people would stop telling you?

All updates must be accompanied by text or a picture.

Related articles

A survey of MyMSTeam members found that fatigue was the multiple sclerosis (MS) symptom with the...

MyMSTeam Survey Finds Fatigue Has Greatest Impact on Daily Life

A survey of MyMSTeam members found that fatigue was the multiple sclerosis (MS) symptom with the...
The emotional toll of living with multiple sclerosis (MS) can have a major impact on a person's...

The Impact of Multiple Sclerosis on Emotions and Quality of Life

The emotional toll of living with multiple sclerosis (MS) can have a major impact on a person's...
It’s no secret that living with multiple sclerosis (MS) can complicate daily life. MyMSTeam...

Steps To Lessen the Impact of Multiple Sclerosis

It’s no secret that living with multiple sclerosis (MS) can complicate daily life. MyMSTeam...
In December 2014, we asked MyMSTeam members, like you, to participate in a survey about what...

MyMSTeam Results Are In: Here’s What You Had to Say About Living With MS

In December 2014, we asked MyMSTeam members, like you, to participate in a survey about what...
Summary: In a recent survey of the MyMSTeam community, 85% of respondents said they’d want...

The Results Are In: 85% of the MyMSTeam Community Want Better Access to Clinical Trials for MS

Summary: In a recent survey of the MyMSTeam community, 85% of respondents said they’d want...

Recent articles

Many symptoms can go along with an autoimmune disease like multiple sclerosis (MS). Everyone’s MS...

Can MS Affect the Skin? Dryness, Lesions, and More

Many symptoms can go along with an autoimmune disease like multiple sclerosis (MS). Everyone’s MS...
If you have multiple sclerosis (MS), you may wonder about the therapeutic potential of lion’s...

Lion’s Mane Mushroom: Is It Effective and Safe for MS Symptoms?

If you have multiple sclerosis (MS), you may wonder about the therapeutic potential of lion’s...
Some people with multiple sclerosis (MS) find that they repeatedly bite their tongue, lips, or...

Can Biting Your Tongue Be a Symptom of MS?

Some people with multiple sclerosis (MS) find that they repeatedly bite their tongue, lips, or...
People with multiple sclerosis (MS) sometimes develop comorbidities (secondary diseases). Some...

ITP and MS: Can Multiple Sclerosis Cause This Bleeding Disorder?

People with multiple sclerosis (MS) sometimes develop comorbidities (secondary diseases). Some...
Feelings of numbness and tingling are common symptoms of multiple sclerosis (MS). Not only can...

Numbness and Tingling in MS

Feelings of numbness and tingling are common symptoms of multiple sclerosis (MS). Not only can...
If you’re living with multiple sclerosis (MS), you may have experienced a common symptom of the...

Costochondritis vs. MS Hug: What’s the Difference?

If you’re living with multiple sclerosis (MS), you may have experienced a common symptom of the...
MyMSTeam My multiple sclerosis Team

Thank you for signing up.

close