Connect with others who understand.

sign up Log in
Resources
About MyMSTeam
Powered By
See answer

Your Answers: The Worst MS Advice (Infographic)

Updated on November 13, 2016

We asked and you answered! We posted this question: “What bits of ‘advice’ do you wish people would stop telling you?” — and hundreds of you took the time to respond.

What did we learn? From the unconcerned (“You should get out more”) to the plain unhelpful (“But you look fine”), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • You should get out more.
  • Just push through it.
  • You don’t look disabled.
  • Everyone gets tired sometimes.
  • Have you tried vitamins?
  • You should go back to work.
  • But you look fine.
  • Just move around more.

Everyone’s situation is different and not all of these apply to each person. Tell us: What advice about multiple sclerosis do you wish people would stop telling you?

Updated on November 13, 2016

A MyMSTeam Member

It s funny you say that because very very few people will make any type of remark to me also. Maybe I just dont look to approachable and they figure they better just keep their mouth shut !!

posted June 2
All updates must be accompanied by text or a picture.

We'd love to hear from you! Please share your name and email to post and read comments.

You'll also get the latest articles directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
All updates must be accompanied by text or a picture.

Subscribe now to ask your question, get answers, and stay up to date on the latest articles.

Get updates directly to your inbox.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Yeah Some Are That Incentive
November 21, 2023 by A MyMSTeam Member 14 answers
Who Else Is Bored?
November 25, 2023 by A MyMSTeam Member 8 answers
Interesting. I Get A Lot Of Those Same Comments. Kinda Rude And Uncaring People.
December 16, 2023 by A MyMSTeam Member 16 answers
I Have Many Of These Questions Myself As I Still Learn About MS
February 27, 2024 by A MyMSTeam Member 2 answers

Related Articles

The emotional toll of living with multiple sclerosis (MS) can have a major impact on your quality...

The Impact of Multiple Sclerosis on Emotions and Quality of Life

The emotional toll of living with multiple sclerosis (MS) can have a major impact on your quality...
A survey of MyMSTeam members found that fatigue was the multiple sclerosis (MS) symptom with the ...

MyMSTeam Survey Finds Fatigue Has Greatest Impact on Daily Life

A survey of MyMSTeam members found that fatigue was the multiple sclerosis (MS) symptom with the ...
It’s no secret that living with multiple sclerosis (MS) can complicate daily life. MyMSTeam condu...

Steps To Lessen the Impact of Multiple Sclerosis

It’s no secret that living with multiple sclerosis (MS) can complicate daily life. MyMSTeam condu...
In December 2014, we asked MyMSTeam members, like you, to participate in a survey about what matt...

MyMSTeam Results Are In: Here’s What You Had to Say About Living With MS

In December 2014, we asked MyMSTeam members, like you, to participate in a survey about what matt...
Summary: In a recent survey of the MyMSTeam community, 85% of respondents said they’d want MyMSTe...

The Results Are In: 85% of the MyMSTeam Community Want Better Access to Clinical Trials for MS

Summary: In a recent survey of the MyMSTeam community, 85% of respondents said they’d want MyMSTe...

Recent Articles

Multiple sclerosis (MS) is an autoimmune disease. In people with MS, the body’s immune system at...

Multiple Sclerosis Treatment Options: List of Medications and Therapies

Multiple sclerosis (MS) is an autoimmune disease. In people with MS, the body’s immune system at...
Multiple sclerosis (MS) symptoms can affect your quality of life and keep you from doing the acti...

How Does MS Cause Disability? 4 Ways It Can Affect Mobility and Function

Multiple sclerosis (MS) symptoms can affect your quality of life and keep you from doing the acti...
Multiple sclerosis (MS) is a chronic condition with a variety of symptoms that come and go. Aroun...

Is It an MS Relapse or a Pseudoexacerbation? 6 Differences

Multiple sclerosis (MS) is a chronic condition with a variety of symptoms that come and go. Aroun...
Transcripción00:00:09:49 - 00:00:33:91Eric PeacockUn último tema aparte ahora, fuera de la espas...

¿Alguna vez se descubrirá una cura para la esclerosis múltiple? El Dr. Boster explica los avances en la investigación

Transcripción00:00:09:49 - 00:00:33:91Eric PeacockUn último tema aparte ahora, fuera de la espas...
Las bebidas con cafeína son un elemento básico matutino para muchas personas en todo el mundo. La...

La cafeína y la esclerosis múltiple: ocho cosas que debe saber

Las bebidas con cafeína son un elemento básico matutino para muchas personas en todo el mundo. La...
Multiple sclerosis (MS) is an inflammatory disease that affects the central nervous system (CNS),...

What Is Smoldering MS? Inflammation May Linger During Remission

Multiple sclerosis (MS) is an inflammatory disease that affects the central nervous system (CNS),...
MyMSTeam My multiple sclerosis Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close