I forgot to mention that My first neurologist also prescribed Amprya for me before he left. It didn't do anything for me either. I guess that's the reason my son continue to say, "Mom, be realistic, don't get your hopes up."
Sometimes I wonder, do I have MS or do I have something that's mimicking the disease š¤ So far, hasn't anything worked for me
I'm praying šš½ for good results with Rituxan
Again, thanks @A MyMSTeam Member. I'm showing my son, who's my primary caregiver, your post. He told me to not to get my hopes up because I have been disappointed before. But, I'm praying things will go well. Take care and I'll post my journey on MyMSTeam.
I donāt mind at all :)
I was diagnosed in May 2016 (yet symptoms started about one year before) with RRMS. I started Copaxone but I never actually āremittedā and things actually kept getting worse. There were a few new lesions on my MRI in January, too. As far as mobility, my balance was still was off, I still couldnāt stand on one foot (left side) for even two seconds, and my left foot was still āslappingā when walking. Anything long distance was still a lot of burning, tingling, numbness, with the ājello-like feelingā that my legs could cave any second.
I saw a new neuro who suggested Rituxan, which gave me the ability to still stay on Copaxone since Rituxan isnāt āapproved for MSā.
With Rituxan, ALL my symptoms got better (not gone, but sooooo much better and I feel alive again). I know PPMS deals mostly with mobility issues, but it really did help all of my issues. For mobility, I just timed it right now and got to 15 seconds standing on my left foot :) Walking has been better as far as some of the sensations being less. They still come and go, but itās not what it was. The foot still āslapsā but not as heavy. Obviously the existing lesions caused some damage, so I didnāt expect that everything would go away. Hopefully no new lesions have formed but Iāll be having that MRI in January. Iāve tried Baclofen, Gabapentin, and Cymbalta, but they oddly made me feel more stiff! I sometimes take lortab and that helps me move like nothing else. It doesnāt make me feel āhighā or loopy or tired. Thereās no change in my personality, it just makes my body feel normal. My daughter actually told me to slow down a few weeks ago as we were walking through the store. I canāt tell you how big of a smile that put on my face and how hearing those words almost made me cry (happy tears!).
It helped other issues, too. I donāt want to jinx it, but my bowel issues have decreased to almost not at all. I take Adderall for fatigue which has worked great. Mental clarity finally came about, too.
Thanks @OneSrepAtAtime. If you don't mind me asking, how was your mobility before your infusion? I have progressive MS. I'm not on any medication. This is the first medication since taken "muscle relaxer" 4 or 5 years ago. The only problem I have is stiffness over my body.
I had my first two rounds in April and I go this week for the next round. For me it was a lifesaver. The first infusion didnāt affect me but the second I felt a lil yucky a day or two later - not unable to function or āsickā, just kind of achy. It took about a month to start feeling like it was actually doing something, but from there on out I canāt stress enough how much it has worked for me and helped. Good luck and I certainly hope the same results for you :)