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Diagnosed With Neuralgia- Have Any Of Ypu Experienced This?

Diagnosed With Neuralgia- Have Any Of Ypu Experienced This?

I have been having sharp severe pain across the top of my head in a two inch band that started as electric, sharp severe pain and is now constant with breakthrough pain few times a day.
My neuro has diagnosed me with neuralgia.

posted November 17, 2017
A MyMSTeam Member

Yes, half my face & head dead could not feel my face. Upsetting as painful and difficult to eat as one side numb. I was fortunate it passed told it's a MS relapse at the time. I would look into acupuncture & relaxation. I've also had constant headache & band in the past I used to put ice pack on my head & try different pain relief. Zero caffeine & try anti inflammatory route I make a drink hot water, teaspoon of Turmeric, teaspoon of honey, sequeeze of fresh lemon.

posted November 18, 2017
A MyMSTeam Member

I've had Trigemenal Neuralgia since even before I was diagnosed with MS , it is without a doubt the worst pain I have ever endured. The only thing that stops it is Tegradol 400 which is by far the worst drug (especially for a male) to take , I take 1200 mg per day and since I have been taking it absolutely no pain. Unless I forget to take them at the designated time , I have my phone remind me when to take it every single day. Doctor did try to reduce the amount I was taking but after a couple of months the pain returned so I was ut back on my previous dosage

posted November 19, 2017
A MyMSTeam Member

I have had periods of Trigeminal Neuralgia, it is spitefully painful. There are very few drugs that can dull it. I have been lucky as it lasted four years and then just stopped... Touch wood it won't come back. I have heard stories of MS patients that have had the facial nerves severed to stop the pain.... Hope this helps.

posted November 17, 2017
A MyMSTeam Member

I hate my Trigeminal Neuralgia of late. It is burning and taking my attention. Hard to much.
I am on meds but today not helpful

posted November 18, 2017
A MyMSTeam Member

Occipital neuralgia, by far worst relapse yet....pain so severe in the back of my neck n head that was throwing up, balance was horrible, difficult with speech and in bed for 2wks until neuro started IV steroids.....guess it has something to do w one of my cervical lesions.

posted November 18, 2017

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