Diagnosed With Neuralgia- Have Any Of Ypu Experienced This?
I have been having sharp severe pain across the top of my head in a two inch band that started as electric, sharp severe pain and is now constant with breakthrough pain few times a day.
My neuro has diagnosed me with neuralgia.
I've had Trigemenal Neuralgia since even before I was diagnosed with MS , it is without a doubt the worst pain I have ever endured. The only thing that stops it is Tegradol 400 which is by far the worst drug (especially for a male) to take , I take 1200 mg per day and since I have been taking it absolutely no pain. Unless I forget to take them at the designated time , I have my phone remind me when to take it every single day. Doctor did try to reduce the amount I was taking but after a couple of months the pain returned so I was ut back on my previous dosage
Yes, half my face & head dead could not feel my face. Upsetting as painful and difficult to eat as one side numb. I was fortunate it passed told it's a MS relapse at the time. I would look into acupuncture & relaxation. I've also had constant headache & band in the past I used to put ice pack on my head & try different pain relief. Zero caffeine & try anti inflammatory route I make a drink hot water, teaspoon of Turmeric, teaspoon of honey, sequeeze of fresh lemon.
I hate my Trigeminal Neuralgia of late. It is burning and taking my attention. Hard to much.
I am on meds but today not helpful
I have had periods of Trigeminal Neuralgia, it is spitefully painful. There are very few drugs that can dull it. I have been lucky as it lasted four years and then just stopped... Touch wood it won't come back. I have heard stories of MS patients that have had the facial nerves severed to stop the pain.... Hope this helps.
I've had TN for many years and that is what made me get an MRI and then they diagnosed me with MS. I have had 2 Gamma Knife treatments which helped for a few years and now it's come back with a vengeance and I'll have relief for a day or two and then it kicks in again where I cannot brush my teeth or eat solid foods. I am on a high dose of Carbamazepine and Gabapentin. Stress and weather changes (from mild to cold) seem to make it worse. I will try no caffeine and anti-inflammatory drink that was mentioned above by Kate_S. (Thank you!)
Have Any Of You WithbMS Experienced Trigeminal Neuralgia?
TRIGEMINAL NEURALGIA (TGN) - IS THERE A CHINK OF LIGHT?
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