MRIs to detect lesions to diagnose MS is extremely useful. It took me many years to figure out that it didn't matter where my lesions were on my brain , brainstem and spine . I am fully aware of the symptoms and the issues that I have. The thing that no one tells you is as soon as you yourself say that you have multiple sclerosis your body hears you. Every part of your body has a conscious. I loudly declare affirmations every morning and the first one that crosses my lips is how grateful I am for being healed! My body hears that also and likes that much more :-)

If the lesions disappear would that just mean there is no more demyelination left to do at that site the lesion was: so new ones appear where the demyelination hasn’t occurred there yet: which in my mind the damage is done and no recovery from that damage:: New lesions making more or different symptoms depending on where they are,,, I guess that’s why I am a believer of treating symptoms because no one can figure out what’s next or we would have a cure,,,

That’s interesting. I would get copies of your last MRI results and this one if you don’t already have them (I always make sure to get copies of final MRI results from all scans for myself). Then read exactly what was written throughout all reports, not just impressions; as a matter of fact stay away from impressions all together until after you read everything else.

If you see a mention of something being an artifact anywhere, that’s more than likely not a lesion; at least that’s what they said about mine; turned out it was the way they shot an image that produced what I’ll call a ghost image. If you’ve had numerous scans, why not just get copies from all of those too? Then you can read from beginning and move forward to present what’s been going on with your lesions. If you like looking at the scans themselves, get CDs of everything too.

I like seeing what’s going on and Google anything I don’t understand, which was a lot. But with time and practice you get to know yourself and what’s going on inside you better so when your neurologist shows you a scan to point something out you’ll know exactly where it is they’re talking about. A great way to be your own advocate and an active participant in your care.

@A MyMSTeam Member I appreciate that. Since the Dr did admit that he has seen it many times where an MS patient will have an exacerbation without MRI evidence. It makes me realize that we have a ways to go to understand what are intensified symptoms and what are not so it is actually refreshing to hear the Dr's tell me this as it edifies that I am not loosing my mind. I am very fit, very active a foodie with what I put in my body but still have symptoms. I think that we can all agree that while there is much to learn, the Dr's are even more frustrated at times because they can't give us straight and 100% answers.

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A MyMSTea...

Yes keep copies of all MRI's and any testing you have done!! Be your own advocate!!