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I am 71 and have had MS since the 90’s. About 2 years ago ago I started getting really sick. Extreme SOB on exertion, heavy sweating, extreme fatigue, insane itching. Heart, lungs are just fine. I have jumped from less than 5 lesions in 2018 to greater than 20 now. (None enhancing). I have been told everything from I no longer have MS to I suffer from anxiety or sleep apnea. I wouldn’t care except I am really sick and don’t know what to do. Any insight is appreciated.

April 13, 2025
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Reactions
A MyMSTeam Member

I'm thinking new Doc..

April 14, 2025
A MyMSTeam Member

Do not let any doctor label you w/o seeing what you are dealing with, @A MyMSTeam Member.

April 14, 2025
A MyMSTeam Member

Find another provider, be persistent and don't give up!

April 14, 2025
A MyMSTeam Member

I am no longer on DMT’s. Was on them for many years. Avon ex was the first. Rebid was the last one. I am waiting to hear from a Neuroimmunology Department at VCU/MCV. That is an entire group of MS Specialists.

April 16, 2025
A MyMSTeam Member

My RRMS SLITHERED Into spms... For me, more subtle but wears and weakens my strength lately.

April 16, 2025

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Poughkeepsie, NY

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