I hear ya! One thing that helped my family was reading 29 Gifts together. The author tells her story of her MS diagnosis and the challenges she faces. It's a great way to get others to understand our current and potentially future issues - and why we are stressed out due to that unpredictability.

Oh that drives me mad people accusing me of being a bitch with attitude- let them people try dealing with this illnesses ooft sorry for ranting lol