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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Is A Spasm In The Back, Chest And Arms Something Anyone Else Has Experienced?

Is A Spasm In The Back, Chest And Arms Something Anyone Else Has Experienced?

I've been having this weird feeling in that area. Not sure if spasm is the correct description but it starts like a pain and tenseness in the neck and shoulders and radiates down my back, chest and arms. It feels like I'm being squeezed and it's quite painful. I don't even know if it's MS related but I figured this is the best place to ask.

posted January 29, 2018
A MyMSTeam Member

Ive had the MS hug around my torso before......but these 'episodes' are my whole body. I dont think that the hug happes in your whole body like this. Im confused.

posted January 30, 2018
A MyMSTeam Member

Also know as the MS hug that no one ever wants

posted January 30, 2018 (edited)
A MyMSTeam Member

I get the same thing, but mine seem to become so intense that my whole body stats to join in on the initial tightness in my neck and once it radiated down my arms and back it doesnt take long for it to happen everywhere. It is so painful, and once it starts I become cold and have whole body tremors. It seems to happen to me in waves and takes my breath away. My Dr. seems to think it is something called dystonia. You can find videos on youtube about it. Thing about it that sucks for me is that there is no pattern. I cant seem to predict when, or how long they will last; they can happen for 20-30 minutes or up to 2-3 hours. Sucks. I thought I was alone with this

posted January 30, 2018
A MyMSTeam Member

It is called banding and yes it is MS related. I used to get it in my one and only episode and I would lay on the floor and stretch out as far as my arms would go. Stretching really helps and if you can get massages too;)

posted January 30, 2018
A MyMSTeam Member

Thanks for all the information everyone. I'll mention it to my doctor at my next appointment, in the meantime I'll read up on it.

posted January 30, 2018

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