I am feeling so weak by the afternoon. I feel like I need to lay down always. I'm trying to get enough sleep and walking 30 min a day. Its just seems to be getting worse.
I am 57 and I decided not to take any meds from the beginning I've had MS for 30 years. Yes I've had relapses but bonced back quickly. I am now a vegetarian as of this year. What I use twice daily is Lion's Mane 1000mg, it helps rebuild the myelin sheaves and takes away brain fog and numbness. I use Sparulina 1000 mg for fatigue and cardio vascular maintainence. Tumeric 1000mg to reduce inflammation and pain. I just started the Wim Hof breathing method for energy and reduce pain. Meditate and Pray alot.
Your MS has gone into remission, but I must say you are the exception to the rule. I believe in alternative medicine especially acupuncture, it works on the meridians throughout the body, it cured me of carpal tunnel syndrome many years ago that was so bad I couldn’t hold the weight of a small potato in one hand to peel it with the other. However it is not a cure all for everybody. I know of twins both diagnosed early in life with MS. They took the same course of action, both were very positive people who tried anything and everything. One leads a normal life, is a fitness instructor and conducts 6am boot camps on a regular basis. The other is housebound without her wheelchair. Please don’t advise people to go off their medication, you’ve had an amazing experience and I’m very pleased for you (envious even), but that’s not everyone’s experience. The reason for fatigue in MS affected people is not because of metal or anything external, it’s due to the constant tremors in the cortex of the brain that the body is dealing with 24/7, some to a greater extent than others. MS is an insidious disease with many different symptoms which affects individuals in different ways. Please don’t take this as a criticism, it’s merely stating that your experience isn’t the normal situation for MS sufferers. My message is sent with love.
Hi All....when it comes to the fatigue associated with MS, this type of fatigue is- shall we say 'unique', as in a good night's rest will NOT re-charge your batteries. Everyone who has MS experiences it differently. This includes how either off us responds to this mind-numbing & energy draining fatigue. It is extremely important to manage ALL three levels of your energy, this means your mental, emotional, and physical energy levels.
I mention the three levels of energy because they are codependent on each other whereas wherever your mind is.... the body and emotions follow! It is crucial for ALL (includes those who don't have MS), who have MS to avoid over-doing physical, emotional, or mental activities. Never be afraid to express to others that 'this'....whatever 'this' is, is something you cannot do, cannot think or talk about.
Here's a scenario for you; when two year olds are overwhelmed emotionally, mentally, or physically, what happens? They breakdown which may require a nap, a time-out or just quiet time. None of us are two...but we ARE human, why not give ourselves a much deserved and needed break when exhaustion interferes with our never-ending to-do list(s). Do NOT feel guilty for tapping into the POWER of the word no!
STAY well Everyone!
I take Provigil in the morning. It does give me an energy high for maybe six hours. I only take this about three days a week when I watch my six month old grandchild. I don’t think I could do it without taking that. Although, days that I do it, my husband says that I’m a chatterbox!