My doc just suggested trying Retuxan, pending results of my next MRI. What has your experience been on Retuxin? Thanks in advance for any info.
I'm sorry I'm so late on this one. I am on rituxan as well. Only side effect for me was my first infusion. My throat got itchy and got a couple hives on my head. Very mild on both counts. It's worked for me thus far. I also get mine every 6 months
I I have been on rituximab for I think close to 5 years. I go again end of May for my infusion, one long day every 6mos(for me). Review with your dr........Bring a few mag/books/a pb&j or sleep (they give me benadryl etc..your dr will know) Also, speeding up the drip as time goes on might give you that lead/metal taste in mouth...bring lemon drops and note/ck the speed of drips as time goes on for future reference and what works best for YOU..always have to ask them to not go as high as they do..everyone is different. Wish you the best
Just some info about MS meds u might find worth listening to. I’m on @aubagio and stops progression, but if used early in the disease it might be better because a gimpy leg might remit and stay remitted with @aubagio. I started @aubagio too late and after remitting stopped. May not be too late for future progression as long as relapses stay gone.😊 ******* Long video but I like it cause it mentions the different MS drugs being used. https://m.youtube.com/watch?v=J4prsO-FDzs ********
Deep dive into DMT’s—
https://m.youtube.com/watch?v=lDvb6tVCxOI
https://m.youtube.com/watch?v=7ObnkCuU7xo ******** Reposted for J.N. Who is considering [[treatment:Rituxan. Why rituximab and not @ocrevus? They are bassically the same drug, but @ocrevus might work better during treatment versus rituximab. See following link I found for details. “Both @Ocrevus and @Rituxan are drugs that target B-cells that have CD20 molecules on their surface, as critics have pointed out. According to a statement issued by the International Multiple Sclerosis Management Practice (IMSMP), the two drugs “should have almost identical anti-B cell activity.” . “The drugs, subsequently, differ in how efficiently they directly, and indirectly, kill B-cells. @Ocrevus has a higher capacity for direct, antibody-dependent, cell toxicity compared to @Rituxan. And, Chin added, it has a lower capacity for indirect, complement-mediated cell killing.“ “Chin also pointed out that while @Rituxan is a chimeric antibody, composed of both mouse and human parts, @Ocrevus is a humanized molecule. “This important distinction reduces the chance that an MS patient’s immune system may form antibodies against the medicine (known as anti-drug antibodies) and may reduce the chance these anti-drug antibodies will decrease the effectiveness of the medicine over time.” Ask your MS specialist if there have been any upgrades that @ocrevus has and not rituximab. **** https://m.youtube.com/watch?v=PtmuaSVHYLM ***** https://m.youtube.com/watch?v=GzHnS7SYKek https://multiplesclerosisnewstoday.com/2017/04/..
I go tomorrow for my 6month infusion..long day..Dr prescribes precautionary meds you mentioned plus some benadryl. Been on it for a few years and glad I am.
I'm just seeing this too.. I'm on rituximab and it has stopped my MS in its tracks. I get mild allergic reactions from the first of the two infusions each time, and they just have to slow down the drip; I take both a intravenous antihistamine and solumedrol to help with the reactions. The only other side effect that I have is that I am extremely (like in a car accident) achy and sore for the few days afterwards, slowly resolving. After the second infusion, I'd say two weeks later I'm back to normal, for 5.5 months. Not bad. I was on Tysabri beforehand and that drug caused all kinds of issues including anemia and bone marrow reconstitution. I cannot tell you how much better I feel these days, and my bloodwork came back almost completely normal after my first round. For the first time since I started any MS treatment.