Here is a good description of occipital neuralgia from a very reputable hospital/university.
https://www.hopkinsmedicine.org/healthlibrary/c...
I wish you luck and love and hope that some DR can get you some help and teach you how to deal with this. I don't have this but I know of a lady in Switzerland with it. She use to be on this site but I haven't seen her post for nearly a year. GOOD LUCK and prayers and love sent!
Sorry l'm no help.good luck hope you find the answers you are looking for.ðŸ¤