I belong to a private facebook group for tumefactive MS. Theres about 500 of us and its been so helpful. I have learnt more from that than any neuros. Because its so rare most doctors dont know much about it. So we all compare symtoms and meds and stories. Do a quick search on facebook for tumerfactive multiple sclerosis

https://rarediseases.info.nih.gov/diseases/5885...

It acts like relapsing and remitting. I've seen mris where people's lesions shrink a great deal after solumedrol steroids

I. Mean heard of it !

I'm going to look that type MS up because I have NEVER heardnof itb.

This is what I find when I researched that.

https://www.webmd.com/multiple-sclerosis/tumefa...