Anyone have insight on Tysabri? Specifically side effects and issues with insurance coverage...

Anyone have insight on Tysabri? Specifically side effects and issues with insurance coverage...

A MyMSTeam Member said:

I was on Tysabri for 1.5 years and had no side effects. I only stopped Tysabri to start my family. I may go back on it again in the future. The once a month 2 hour infusion wasn't bad at all.

posted over 1 year ago
A MyMSTeam Member said:

On tysabri for 23 infusions sofar and love it. Minor headaches here and there otherwise few side effects. Covered fully by insurance.

posted over 1 year ago
A MyMSTeam Member said:

Sorry I thought I had posted this already. Some information I have posted, but seeing it again doesn’t hurt.
Information about ocrevus is in the below information.

Dr. Aaron Boster made several MS videos and here’s one about benign MS.
https://m.youtube.com/watch?v=FOF2eY9KSfI

Repost - FYI:
Sorry in advance for the long read:
For cognitive and fatigue issues the medication Ampyra might help. It’s worth a try. See video as it mentions that it can help with walking problems or any where there is demyelination. For vision issues steroid infusion has helped others in this forum.
https://m.youtube.com/watch?v=UT8xlpRnsmU

This is a webinar that mentions MS medications and how they compare to each other. This information is scattered all over the internet and great to have it in one webinar. A must see.
“Published on Apr 23, 2018
Join RMMSC Medical Director Dr. Timothy Vollmer for an in-depth look at disease modifying therapies (DMTs) – the front line in our fight against MS. This webinar will give you a better understanding of the treatment options for MS, including insight into how specific DMTs work, their comparative safety, and their comparative effectiveness.”

Mentions tysabri side effects and how they don’t use tysabri on patients that are JCV positive cause it causes high PML risk.

https://m.youtube.com/watch?v=lDvb6tVCxOI

Some data presented👇:
@ Avonex decreases relapses by 30% and has no effect on brain atrophy.

@ Copaxone
Decreases relapse rates by 30%
Decreases brain atrophy by 20%

@ Aubagio Tablet
Decreases relapse rates by 30%
Decreases brain atrophy by 20%
@Gelenya
Decreases relapse rates by 60%
Decreases mri activity by 60 to 70%
Decreases brain atrophy by 34%
Chance to improve symptoms is moderately high.

@ Tysabri:
Decreases relapse rates by 67%
Decreases mri activity by 80%
Decreases brain atrophy by 45%
Not recommended to use this medication if you are JCV positive.

@ Tecfidera. Tablets
Decreases relapse rates by 50%
Decreases mri activity by 50%
Decreases brain atrophy by 30%
@ Ocrevus
decreases relapse rates by 80%
decreases mri activity by 95%
decreases brain atrophy by 45%
Chance of improving symptoms is very high in RRMS.

Decreasing relapse rates should be a must when fighting MS.
Other MS information 👇
https://m.youtube.com/watch?v=sG1DPWKW99E
https://m.youtube.com/watch?v=0_iPucV2SxM
https://m.youtube.com/watch?v=J4prsO-FDzs
https://m.youtube.com/watch?v=7ObnkCuU7xo&l...
http://mscured.com/stem-cell-transplant/what-is...
Scroll down then Press home to watch this video.

https://m.youtube.com/watch?v=T1ipXA4I0_M
This video was 2016 and need to follow up to see where this doctor is with his stem cell work and his nerve damage repair progress.
https://m.youtube.com/watch.

https://m.youtube.com/watch?v=ou-p_RDUbB4
...

posted over 1 year ago
A MyMSTeam Member said:

Thank you, are you still taking it?

posted over 1 year ago
A MyMSTeam Member said:

Did tysabri for two years. Loved it no side effects at all. Didn’t cost me a dime.

posted over 1 year ago
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