One of the things that bugs me is that when I tell people I have MS, many people immediately have some cure that they are sure would work for me. Usually, these things are just pseudoscience but a friend who I think is pretty smart and who has Celiac disease is always on my case to stop eating wheat. I’ve stopped doing recreational drugs and drinking alcohol (it doesn’t mix well with the medicine I take to combat fatigue) but cutting out pizza and pasta is a line I’m reluctant to cross. Here is… read more
The more research I do, a lot of autoimmune diseases seem to benefit from good gut health. I’m currently taking some supplements (I forget the rules about what you can talk about/promote) And I’ve also changed my eating habits to more of an AIP diet. It cuts out sugars, gluten, soy and dairy products to reduce inflammation. I still eat a few items that are in the list because they don’t seem to bother me.
Since making the switch a couple weeks ago, I’m noticing a huge difference in my fatigue levels and my sleep has improved. But I’ll tell ya, the best thing yet, is that my brain fog has started to lift! It’s pretty amazing. I’m excited to see how I’m feeling by the end of the month!
@A MyMSTeam Member I myself avoid reading abstracts because they can be confusing and in this case, not contain the full text; if you want to read that you have to pay money. As far as the gut goes or more like the entire digestive system starting from point of entry, mouth, to exit, anus, I have things going on.
After one of my relapses I ended up with a weakened tongue muscle, sleep apnea, GERD and just last week a diagnosis of Ulcerative Colitis or UC (inflammation of the colon) instead of the Irritable Bowel Syndrome IBS my Gastroenterologist thought I had for years. You also need to include the Gastroparesis or slow emptying stomach my MS caused too.
I eat a healthy diet, take insoluble fiber because I’m limited in the amount of soluble fiber I can have and take medications to help with all my conditions, plus a probiotic. I’m limited in the types of medication I can take because I ended up with Stage 3, Chronic Kidney Disease from taking Celebrex for too long. For the rest of my life I can no longer take any type of NSAIDs, which relieve inflammation.
For me anyway, keeping a healthy gut is not in the cards, I’m just trying to keep my conditions under control so I don’t have any flare ups.
Everyone becomes an instant neurologist when you tell them you have MS. Usually, they tell me something that I already knew about like the Wahl's Protocol. I used to get articles about Dr. Zamboni's vascular procedure, claims about diet coke, one er nurse touted a study using ringworms...my PCP laughed at that one. You'll learn what makes you feel good or bad. Your body tells you what it needs.
Thanks for the correction.
One comment I meant to reply to a while ago but then I forgot: someone said that supplements just “give you expensive urine” while I mostly agree and this is what my doctors usually say when I ask them about supplements, I think there is some good scientific evidence that people with MS tend to be low on Vitamin D and should take D supplements. One of the first things my Kaiser neurologist recommended is that I take Vitamin D. Also, when I got my blood tested (for other reasons but I asked them to check my Vitamin D level because as Sherlock Holmes said: “data! data! data!, I can’t make bricks without clay Watson!”) it turned out that my Vitamin D level was indeed way below the recommended minimum.
@A MyMSTeam Member - whoops. did I say Keto, I meant Mito. :( They didn't really promote one over another, it was just a review of different things that people do. My impression was that they felt everyone responded differently and not everyone could fully do some of the diets. I could never start eating lots of things on Wahls. Organ meat? I think not. Sorry for the misstatement.