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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Were Any Of You Misdiagnosed With Something Else?

Were Any Of You Misdiagnosed With Something Else?

Interesting read:

https://newsnetwork.mayoclinic.org/discussion/m...

posted October 23, 2018
A MyMSTeam Member

I am pretty sure that one "symptom" everyone with MS has is being misdiagnosed! 😂 I've been diagnosed with Epstein Barr virus, fibromyalgia, rheumatoid arthritis, osteoarthritis, degenerative disc disease, lupus, myofascial pain syndrome, chronic fatigue syndrome, trigeminal neuralgia, depression, anxiety disorder, PTSD, what am I forgetting?
I've had MS since my teens but got diagnosed in my late 20s. Since then I've had tons of doctors disagree about what other doctors said. It's maddening.
I keep reading and figuring out myself what may be going on and take the info to my doctors. Some listen, some don't.

posted October 24, 2018
A MyMSTeam Member

Before MS I was told I had Mitro-Valve Prolapse and I was put on Nitro. Pills which I quit. Years after My MS DX. I started having severe pain and My Family Doc. tried to tell Me that MS does not cause Pain and said that I had Fbromyalgia as well as MS. I do not agree!!!!!

posted October 24, 2018
A MyMSTeam Member

In 2006 way before MS diagnosis, 10 yrs to be exact, I was referred to a Rheumatologist and diagnosed with Scleroderma. I was also monitored for lupus. I quit going after about 3 years because I felt like I had zero symptoms for Scleroderma. My ANA was abnormal..thats why I was referred to a specialist. Plus, my arms and hands would go numb. It was probably MS all along. Thyroid disease was diagnosed as well.

posted October 23, 2018 (edited)
A MyMSTeam Member

@A MyMSTeam Member you are not alone-Many of us were happy to get A Dx. I remember thinking 'Good, I'm not losing my mind. I'm NOT crazy!'

posted October 23, 2018
A MyMSTeam Member

Initially, my doctor thought my numbness from the waist down was a bulging disc in my lower back. After an MRI of the area showed nothing of course, there was a lot of pondering. Doctor even suspected spinal cord compression and sent me to the ED. Waste of a day.
Finally, a neurologist decided to explore further up my back and my brain with a full MRI of both and what do you know, lesions galore. That result was a shock to me as for 12 months I was told it was most likely a bulging disc.
But anyway. Glad I know now :-)

posted October 23, 2018 (edited)

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People With MS Often Go Undiagnosed for Years After Their Symptoms First Appear

People With MS Often Go Undiagnosed for Years After Their Symptoms First Appear

A MyMSTeam Member

I accumulated random symptoms in my 20s and 30s. The MS hug reared its ugly head when I turned 40. It would still be another 15 years until I was diagnosed with PPMS.

posted 16 hours ago

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