Connect with others who understand.

sign up log in
Resources
About MyMSTeam

Connect with others who understand.

sign up log in
Resources
About MyMSTeam
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Doctor Just Told Me I Dont Have Enough Lesions To Have Cognitive Issues. How Many Lesions Do You Have?

My Doctor Just Told Me I Dont Have Enough Lesions To Have Cognitive Issues. How Many Lesions Do You Have?

posted over 3 years ago
A MyMSTeam Member said:

Praying for you sometimes when you get a doctor like this you almost wish that they could walk in our shoes and see how they would feel. I think some doctors just don't know so they say dumb things i don't think it matters how many lesions you have but rather where it is , if it is pressing on the right nerve. I had to go through several doctors before I found a good one so just hang in there God is going to take care of you. Cause with God All things are possible. Praying God will send you to the right Doctor so you can get the help you need. God Bless

posted over 3 years ago
A MyMSTeam Member said:

Time for a new neurologist. One who knows more about MS. That is terrible!!!!!!!

posted over 3 years ago
A MyMSTeam Member said:

I have 29 lessions. I did have some cognitive issues at one point, but I believe they were due to the Gabapentin (that my neurologist prescribed). She told me it was either my psych meds or depression causing the cog fog. Funny how getting off Gabapentin cleared my head right up. 😉 Lazy neurologists love to blame psychiatric conditions for symptoms. It bums me out man 😕

posted over 3 years ago
A MyMSTeam Member said:

@A MyMSTeam Member I hope you’re seriously considering changing neurologists if you got told something like that. I can say unequivocally it can only take ONE lesion perfectly placed to cause all kinds of problems, be it physical or cognitive. I have less than ten MS lesions, one alone in cervical spine caused a transverse Myelitis attack resulting in lasting physical damage to this day. Cognitive issues started early on and continue to increase as time has gone on.

If you’re not already, you need to “Be your Own Advocate - Stand Up for Yourself” and be an active participant in your care. Ask yourself if your neurologist is treating like a patient or a person, do they really listen to you or do they just tell you what to do? Personally, I cannot tolerate doctors with a God-like complex where they think they know everything and don’t want to take extra time when an appointment calls for it.

My neurologist is amazing, she takes as much time in my appointments as necessary discussing things and answering all my questions. She genuinely cares about me and how I’m doing and definitely wouldn’t tell me something like yours told you. She wouldn’t just dismiss the possibility because that’s what they believed; every patient’s MS affects them differently, so anything is possible.

posted over 3 years ago
A MyMSTeam Member said:

as far as I know, it is not necessarily the number of lesoons as much as wherethe lesions are located.

posted over 3 years ago
Already a Member? Log in