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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Advice

Advice

Going for a telahealth conference with ms specialist from upmc pittsburgh on tuesday. I am really nervous that they will be dismissive like previous neurologist. A. Has anyone seen someone feom there before and how was it? B. Any advice to get their attwntiin and take me seriously. Still waiting for definite diagnosis. Been tested for every ms mimic

posted over 3 years ago
A MyMSTeam Member said:

Write notes and read them to your doc so you dont forget or get sidr tracked

posted over 3 years ago
A MyMSTeam Member said:

Other than them not being able to literally put their hands on you, treat this appointment with the same attitude you would in person. You are there because you have serious issues and need answers. I know that MS symptoms themselves are constantly annoying and bothersome. But - they've heard all about symptoms all day from everyone.

The important points for this appointment is to review all the tests and results that you've gone through already. If you haven't already done so, send everything you can regarding testing to them electronically - even if you have to resort to faxing it to them!! The more things you can provide in writing, the better! Don't worry about MRI discs, the written reports are fine for now.

If you have trouble finding a place to fax, you could merely send it to UPMC main office but be certain to include a cover page, number of pages sending and your name in the same place on every page!!!

Have a pen and paper nearby so you can take notes.

Open by telling them how frustrated you are not have a diagnosis for ails you.
Then, ask how they can help you from this point forward.
This leaves the ball in their court with you having alerted them to your agenda.
They will ask all the questions to get info they need to have. They will take charge of the "exam".

When things are closing up, make sure you both are on the same page with a plan moving forward! If they tell you they can't do anything without you seeing them, be prepared to either go there or if that's impossible, ask that they not just give you the name of a neuro but that they call the neuro to "introduce you".

Good luck! 😎

posted over 3 years ago
A MyMSTeam Member said:

sbanning
dont defer to them just because they have dr after there name . they are human just like you . explain to them what you have been going though . be as clear as you can, explain your health problems, and that your very frustrated by not being taken serious by other drs that your sick and just looking for the right ans and need there help to get you there . good luck
lorri

posted over 3 years ago
A MyMSTeam Member said:

did they tell you what is wrong with you? I am sorry you dont have MS but also glad I am hopeful you got some answers

posted over 3 years ago
A MyMSTeam Member said:

Great! I don’t have ms.!

posted over 3 years ago
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