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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Lake, MI

Anyone ever go off their seizure meds? I have not a had a seizure since 2005 and it was the only one I have had. That was what showed I have MS. I am on .5 Lamitial 2 times daily. My co-pay has gone up to $100 a month. No in my budget. Asked Neurologist and he said you haven't had one in 13 years let's just leave it alone. Wonder if he will pay my co-pay

February 12, 2019
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Answer Summary

Several members weighed in on the question of going off seizure meds after many years without a seizure, with strong caution shared from... Read more

Several members weighed in on the question of going off seizure meds after many years without a seizure, with strong caution shared from personal experience. One member described stopping their medication after a single seizure, only to have a second one two months later that led to a week in the hospital and three weeks in rehab. A recurring theme was exploring financial assistance options, with members recommending contacting the drug manufacturer directly and sharing a NeedyMeds link to help cover the cost of Lamictal.

A MyMSTeam Member

Try to get help from company that makes it. Some do help.

February 12, 2019
A MyMSTeam Member

Never had to deal with seizures. Hope you find some answers. Prayers are with you. Hugs

March 30, 2019
A MyMSTeam Member

https://www.needymeds.org/drug_list.taf?_functi...

Heres where you go for help paying for Lamictal.

March 29, 2019
A MyMSTeam Member

Don’t be driving Merry if you go off. !

February 14, 2019
A MyMSTeam Member

The drug companies have helped me. Call them or go on line to the Company.

February 12, 2019

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