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A MyMSTeam Member asked a question 💭
edmonton, alberta, CANADA

I’ve had a few seizures (grand Mal) and went unconscious. Are seizures common in this community?

November 27, 2023
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Answer Summary

Members responded with care and support to a question about whether seizures are common in the MS community, noting that while seizures affect... Read more

Members responded with care and support to a question about whether seizures are common in the MS community, noting that while seizures affect only about 2 to 5% of MS patients, they do occur and can even be a first symptom leading to diagnosis. Several members shared personal experiences with tonic-clonic and simple partial seizures, with some finding relief through medications like lamotrigine and Trileptal, and the original poster shared that lamotrigine has been working well. A recurring theme was the importance of taking medication consistently, keeping your neurologist informed, and leaning on community encouragement to stay strong.

A MyMSTeam Member

Thanks everyone for your responses. I'm on Lamotrgin, and it's working! I'm grateful for such great medical care. I missed a couple of doses and had a mild seizure. I was so scared! Lesson is don't miss a dose :)

November 28, 2023
A MyMSTeam Member

No I haven't experienced that. It's distressing to know that anyone suffers through that. God Bless and stay strong

November 27, 2023
A MyMSTeam Member

Seizures with MS are possible. Make sure your neuro knows.

November 28, 2023
A MyMSTeam Member

I have. Had the 1st of my tonic-clonics in late 2020, and then 3 in a row one night in April 2021. I've been on lamotrigine for a year and a half for my first MS symptom (simple partial seizures) which got me my CIS diagnosis.

If you have any questions, I'm always here 🫂❤️

November 27, 2023
A MyMSTeam Member

I haven't had any seizure but how frightening. Be safe be strong. I hope your doctors can find answers for you.

November 27, 2023

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