Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people whoโ€™ve been there
  • People who understand what youโ€™re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question ๐Ÿ’ญ
Maumelle, AR

I've been on 300mg Biotin for 6 months, not sure it's helped yet. Is anyone here taking the 300mg dose of biotin daily that studies showed help PPMS ? If so, have you had any results ?

February 13, 2019
 · 
Reactions
A MyMSTeam Member

My Neurologist placed me on compounded Biotin 5 months ago. I stopped after 1 week because it messed up my bowels. I waited for a few weeks and tried again with the same results.

First MS disrupted my bathroom habits, then Prostate Cancer did a further disruption and then the Biotin even disrupted further.

February 13, 2019 (edited)
A MyMSTeam Member

Here is a closed Facebook group to join for more information about Biotin. Keep in mind that the past and current trials for Biotin are only for clinically identified as Non-active PPMS.

https://www.facebook.com/groups/BiotinForProgre...

February 14, 2019 (edited)
A MyMSTeam Member

I used it for six + months. Felt a little better. It through off blood work results (thyroid). I just use a strict low sugar, low fat diet. Diet really helps me.

February 14, 2019
A MyMSTeam Member

The correct dosage is 100mg, taken 3 times daily of High Dose biotin. There is a post above where I included a link for a Biotin for progressive MS Facebook group.

February 16, 2019
A MyMSTeam Member

My neuro told me about the Biotin trials, but you need to take 30,000iu in a dose (30 OTC pills) a day. By the time they found pharmacy to conjugate the biotin into one pill at my next visit to the neuro, he said the success rate on MS patients wasn't worth it. I will tell you that in between my neuro visits, I decided to take the highest dose of OTC Bioten I could buy, and though my MS symptoms didn't change, my hair and nails grew like CRAZY!

February 16, 2019

Related Questions

View All
A MyMSTeam Member asked a question ๐Ÿ’ญ
Naples, FL

A MyMSTeam Subscriber asked a question ๐Ÿ’ญ

A MyMSTeam Member asked a question ๐Ÿ’ญ
Geelong, Victoria, Australia