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Has Anyone Done The Lemtrada Treatments? My Dr Is Recommending This Or Tysabri. Any One With Experience With These?

Has Anyone Done The Lemtrada Treatments? My Dr Is Recommending This Or Tysabri. Any One With Experience With These?

posted February 15, 2019
A MyMSTeam Member

I had my first round of Lemtrada last July.MRI in December no new lesions and 1 active one is no longer active.Have not experienced the serious side effects.Feeling much better.I think it has worked great for me.

posted February 16, 2019
A MyMSTeam Member

I like lemtrada it has helped me quite a bit so I would b team lemtradaπŸ˜‰

posted February 16, 2019
A MyMSTeam Member

My neurologist told me that I have an "aggressive" form of MS, and he recommended Lemtrada, even though it has a whole bunch of serious side effects.

My husband and I had decided to fight MS however we could (e.g., I've been following the diet and other lifestyle pieces of George Jelinek's Overcoming MS book/website, etc.), so after considering the potential side effects vs what kind of situation I'd be headed toward if I didn't do Lemtrada, we decided that I would do it.

I finished my second course in 2016, and I haven't been on any MS drugs since before the first course. There were definitely some challenging aspects to the treatment - I had low heart rate at the end of one day of the first year's course of treatment and had to see a cardiologist before I could finish that course, and after the first course, I spiked a fever and had to go to the ER and spend a few days at the hospital because I'd caught a very common infection that I wouldn't have caught if my immune system was in full force.

But after the treatment, I've had no problems and feel incredibly blessed.

I don't know what it's like to take Tysabri, but I'd strongly recommend considering Lemtrada.

posted February 15, 2019
A MyMSTeam Member

Tysabri even if your jc+

It’s been out way longer and regulated hardcore lemtrada new and I hear it is an option I just stick to things with high results that have been out longer

posted February 17, 2019
A MyMSTeam Member

I could not take Tysabri because I have the jvc virus. I had my first Lemtrada was for 5 days & one 4th day I did have some issues. Pain in left arm,chest, back & under my chin on left side of my face as I was receiving the treatment. The treatment was stopped & I had to go to emergency room & a heart attack, stroke & blood clots were ruled out therefore I was able to complete the treatments. The anxiety was terrible.

My second round of Lemtrada was this past September 2018 for 3 days & I didn't have any problems during the treatments. After I had the first round if treatments I didn't have any new lesions.

I have secondary progressive MS & the MS had to be treated aggressively & I had to prayπŸ™ to see if Lemtrada was best for me.

All the MS meds have serious side affects. Pray for which treatments are best for you.πŸ˜‰

posted February 16, 2019

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