Was on Tysabri for 8 years, always have tested negative for JCV (touch wood), and now on Tecfidera. The Doctor has you tested, If I remember correctly, before you start and every 6 months to be sure you stay JCV-negative (some of the MS DMTs pose a risk of JC Virus-positive test results). Don't worry unless you have to. Mind your spoons, and Be Well!

Hey Karen I see you been on Tysabri and you’re loving it.
I was just like you; I love Tysabri it was a drug of choice and it was the last for me, so well to help me for 3 to 4 years and then I got the JCV virus on my brain and my neurologist told me we have to take you off of it. I was so so sad now I’m not on anything as Hell is freezing over my butt which is sort of been taken off with no other drug to be put back on so I just wish wish wish I could go back on Tysabri with that being said; I just want you just to follow up with your doctor to see how if anything your brain is doing ?

Have a great day enjoy your time, all the best to you.

bye for now
Andrea

I’m JCV negative and have been on Tysabri for over a year straight ..... no new MS attacks! It actually works for me! Copaxone didn’t.

Good luck!

Yes! I'm actually seeing my pcp soon bc the swelling is in both feet/ankles/legs. I'm on a water pill but it doesnt do anything. So far, it seems only prednisone helps and it takes away the swelling completely. I wear compression socks, not like I should tho. And if my feet or legs get really hot, I use an ice pack on the swelling.
Swelling is the worst. I hope you figure out what's going on.
Oh I also use epson salt and soak my feet. It does help some for me.

Haven’t had my JCV levels checked yet. Will be doing that tomorrow.

Thank you Karen! Glad to hear it’s working for you!