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MS HUG

MS HUG

RENAMING THE MS HUG
I was at my 6 month check up with my MS Nurse Specialist, when I experienced a fairly short lived Hug. She recognised it for what it was and said " Why do they call it a hug, hugs are supposed to be nice? Surely there could be a better name? "
I have thought this before, apologising for sending hugs to someone who had been struggling with the HUG!
There must be a better name for the Hug, whilst still describing the effect. Vice or Clamp spring to mind.
Ideas on a postcard please!

A MyMSTeam Member said:

I would say I am feeling crushed lol its an awful experience! The name squeeze of death sounds about right katastic

posted about 1 year ago
A MyMSTeam Member said:

.. it just keeps going and going and going....

posted about 1 year ago
A MyMSTeam Member said:

I hope things get better for you too. No more Hugs.

posted about 1 year ago
A MyMSTeam Member said:

@A MyMSTeam Member like yourself, I have not personally experienced "The Hug" in my 31 year MS journey, I pray never to experience it.
The MS hug is a highly unpleasant, painful banding sensation that occurs anywhere around the torso. Some people in the online community have referred to the MS hug as the “Squeeze o’ Death
Explanations of the cause of the MS hug vary. The pain may be neuropathic in origin such as dysesthesia (which is basically a really bad paresthesia). The pain might stem from extreme spasticity in the intercostal muscles of the rib cage. There are three layers of muscle fibers in the intercostal muscles that connect the ribs and assist with breathing. If these muscles are involved, symptoms may include chest tightening, difficulty breathing, and limited mobility.

edited, originally posted about 1 year ago
A MyMSTeam Member said:

Yes MS boa constrictor!!

posted about 1 year ago
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