If you’re living with multiple sclerosis (MS), you may have experienced a symptom known as the MS hug, also referred to as girdling or banding. This sensation is common among people with MS and is described as feeling like a tight band being squeezed around your chest or ribs. Sometimes, the MS hug can be confused with another common pain symptom, called costochondritis, which is inflammation of the cartilage between the ribs.
People’s experiences with MS can vary so much, and many types of pain can be described similarly. That’s why explaining your symptoms to your doctor and figuring out the cause can feel frustrating and confusing.
“Anybody else battle with costochondritis?” asked one MyMSTeam member. Another member responded, “I don’t know what that is, or maybe I know it by a different name. What does it do?”
If you’re living with MS and have had an unexplained feeling of tightness or pain in your torso, this article may shed some light on potential causes and better equip you to talk to your doctor about your symptoms.
Each person experiences the MS hug differently. The symptom can cause tightness anywhere between the neck and the waist. It may be felt on one or both sides of the body, and it can range from an annoying tickle to a vise-like grip that makes it difficult to breathe.
With MS, pain symptoms may be caused directly by MS damage to the nervous system, the result of damage to muscles or joints due to disability, or both. Nerve damage produces the nerve pain of the MS hug, and muscle spasms create the pressure, tightness, and aching.
Heat, stress, and exertion are common triggers of MS symptoms, including the MS hug. In people with relapsing forms of MS, the hug can also be triggered by a flare or relapse. And in some cases, members report that they’ve had costochondritis triggering an MS hug.
MyMSTeam members have described the MS hug in various ways, ranging from mild discomfort to severe pain:
Costochondritis develops when the cartilage between the ribs becomes inflamed. The term “costochondritis” comes from Latin and Greek roots: “costo-” meaning “rib,” “chondr-” meaning “cartilage,” and “-itis,” indicating “inflammation.”
In most cases, there’s no clear cause for costochondritis. There are, however, a few risk factors to consider:
Researchers haven’t determined exactly how common costochondritis is for people with MS.
MyMSTeam members have shared what costochondritis has felt like for them.
“Guessing it is possible to have the hug and costochondritis,” wrote one member. “Horribly painful.” Another member said, “I was told by my neuro that costochondritis was part of my MS hug in that it involved part of the rib cage … such terrible pain, I thought I was having a heart attack. The attack lasted about two weeks and hasn’t ever returned.”
Other members have talked about how costochondritis symptoms can show up suddenly and without warning. “For two months now, I’ve had dull chest pain near my sternum that my GP diagnosed as costochondritis,” a member wrote. “During this time, the pain comes and goes, no rhyme or reason. However, in the past two weeks, the pain can be anywhere on my chest, and I’ll also feel it in the same location on my back. At times, my shoulders and neck have been tense.”
When you’re already living with symptoms of MS, the painful effects of costochondritis can feel overwhelming. Talk to your doctor if you start experiencing new symptoms that concern you.
It can be hard to tell the difference between the MS hug and costochondritis because both can cause a painful squeezing feeling around the chest and make breathing difficult.
A few key points to remember about costochondritis are:
It’s important to check in with your doctor to rule out other conditions if you’re still unsure whether your pain is a symptom of MS.
Costochondritis usually has to run its course before it goes away on its own. There are a few strategies doctors may recommend to help manage your symptoms. Treatment options for costochondritis typically include nonsteroidal anti-inflammatory drugs (NSAIDs), rest, and physical therapy. In some cases, other medications may be considered based on individual needs.
You can also try simple self-care strategies if your symptoms aren’t severe. For example, using heat or ice or simply resting your body could help make you feel better. Mindfulness and cognitive behavioral therapy could also help you shift your focus and cope with the painful symptoms. Be sure to speak with a doctor before choosing a treatment plan.
If your rib pain seems to occur during MS relapses — periods of new or worsening neurological symptoms — it may be a sign that your MS isn’t being fully controlled. More than 20 disease-modifying therapies (DMTs) have been approved to help lower the number of MS relapses and slow down disability. If you’re still having flares even while following your treatment plan, talk to your neurologist about whether a different approach might help.
If you’re unsure about your symptoms or they’ve been going on for a while, it’s a good idea to seek medical advice.
Here are some ways to prepare before your appointment to help make the most of your time:
This isn’t a complete list, but coming prepared to your appointment can help your doctor understand how costochondritis is affecting your life. It can also lead to more specific questions your doctor may ask and help guide the conversation about the best next steps for managing your symptoms.
Read about when it’s time to go to the emergency room with MS symptoms.
On MyMSTeam, the social network for people with multiple sclerosis and their loved ones, members come together to ask questions, give advice, and share their stories with others who understand life with MS.
Have you had costochondritis symptoms? Share your experience in the comments below, or start a conversation by posting on your Activities page.
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I'm here just trying to figure out if it's MS Hug or something else,,been going on for a few months now,,this morning it took me half an hour to get out of bed,so painful hard to breath,pain start as… read more
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