I was diagnosed with Benign MS September 25, 2019, after a 26-year journey to find out what the heck I had after being told I had MS and then a specialist said no you don't and have undergone seven or eight MRI's and Spinal Taps over the past 26 yrs. This is why I am asking the questions above.
Happy birthday month!! Can you do me a solid? Please ask your diagnosing doctor what is meant by benign MS. So you have muscle spams but they're benign? Did they ask you? (I'm very sarcastic but was quite taken back by the notion of benign MS)
I've found that after 12 years my neuro is still reluctant to label my case as "benign".
"Benign multiple sclerosis (MS) is a mild course of MS seen in 5-10% of MS patients. In people affected by benign MS, there is no worsening of functional ability even after 15 years of diagnosis."
https://www.news-medical.net/health/Benign-Mult...
Note that benign MS does not mean the disease is not present or that there are not symptoms to be dealt with. The symptoms tend to be more in the areas of sensation, cognition, emotional lability, etc. but little effect on mobility. These MSer's still must deal with things such as overheating, fatigue and all the other crap - it's mainly about mobility though some also include the ability to still work.
"'Benign' means 'something doesn't cause any harm'. You can only really say you have benign MS after you've gone 15 years or so without many symptoms and you've got little or no disability."
"The term isn't recommended as it can only describe your past experience of MS, not whether you might relapse in the future."
https://www.mssociety.org.uk/about-ms/types-of-...
I was just going to ask a question like this. My doctor calls it "silent" MS. I was diagnosed in 2015 with full body numbness but I have never had a relapse or any major life altering symptoms. I often wonder if I have MS or not.