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A MyMSTeam Member asked a question 💭
St. Charles, MO

I'm new here, so I hope this is okay to ask. I am still going through testing and haven't been diagnosed yet.

At times it feels like my entire upper body (arms/chest/back) are vibrating. It's not tremors as nothing is actually shaking... but it feels like it is. It seems to be worse at night time. I'm not sure if it's actually worse or it's just because I've finally sat down and am finally still.

Has anyone else dealt with this? Does this sound abnormal? It really scares me.

February 6, 2020
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A MyMSTeam Member

Yes. I started having this 4 months ago. It's a horrible sensation. I feel it in my pelvis and down my legs, as well as my chest. It is worst when I look down or bring my chin to my chest.
What has helped me is to do breathing exercises - breathe in slow to the count of 4, hold for 2, breathe out long for the count of 6, hold for 2. I lay down and do a number of rounds of this - or just breathe in slow and breathe out long without counting - anything that can slow and deepen the breath that is relaxing. Things will usually settle a little, but they don't disappear. Hope this brings you some relief!
Also - I had an MRI done of my cervical spine after this started and it showed a small lesion on the cervical spine.
I do feel better in the morning...but it's always there.

February 7, 2020
MyMSTeam

Vibrating sensations in the upper body can be a symptom experienced by people with multiple sclerosis (MS). These sensations can vary widely among individuals. Some people describe it as a "slapping" sensation inside the chest, abdomen, back, or limbs. Others have reported their brain, eyes, face, or ears vibrating. These Show Full Answer

Vibrating sensations in the upper body can be a symptom experienced by people with multiple sclerosis (MS). These sensations can vary widely among individuals. Some people describe it as a "slapping" sensation inside the chest, abdomen, back, or limbs. Others have reported their brain, eyes, face, or ears vibrating. These internal tremors can feel like being "plugged into an outlet" or like "throbbing vibrations." It's important to discuss these symptoms with a healthcare provider to manage them effectively.

July 14, 2024
A MyMSTeam Member

Yes, it’s called Lhermitte’s sign. I had it when I was getting diagnosed. The sensation got worse when I looked down. It started to improve and ended up going away after about 6 weeks I think!

February 10, 2020
A MyMSTeam Member

I feel that type of sensation when I look down.

February 9, 2020
A MyMSTeam Member

I have felt that in my neck and shoulders

February 8, 2020

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