We have all had symptoms before diagnosis, some got us to the doctor sooner than others. The onset of my first symptoms made me feel that I had a brain tumour, and I prepared my mind to join 'the passed'. Five weeks later I was ecstatic to only have MS.
What are your stories for self diagnosis with this weird and wonderful condition?
Answer Summary
Members shared their journeys of self-diagnosing MS before receiving an official diagnosis, with many describing years of misdiagnosis ranging... Read more
I started to have short term memory loss. I was a production supervisor with excellent memory, remembered all the orders and never had to write a thing down. Them all of a sudden it seemed like I just couldn't retain information. I went golfing with my ex-husband and my brother and I was on the golf course crying because I couldn't remember how many time I hit the ball. I'm not a very good golfer. My husband at the time pushed me into going to the Dr. cause he was tired of me not being able to remember anything, so I went. I was diagnosed with a B12 deficiency and was told to see a neurologist. That'
s when I was first diagnosed, I chose to have a second opinion and I've been with that Dr. until he stopped practicing. I had an MRI which showed lesions on my brain, after talking with him I guess I had more symptoms than I knew. I had optic neuritis, which made my vision in one eye seem like I was going blind. They gave me a steroid which helped and my vision came back, but my neurologist said that is a symptom of MS, also numbness in my legs and feet. I thought it was the end of my world when I was diagnosed because I knew nothing about MS. I'm still going pretty strong 25 years later.
When I was having a relapse this was when my vision became severely affected as all I could see were the optical lines as they were being transmitted and distorted like tenet were from and to my brain when I was looking at something but my optical lines were going haywire they were. Thats a good word to describe their action, I then went to see my MS nurse and she was able to assure me tshe was that my eyes were not infected but she did tell me she did to go to the optician she said and he said do I the same as her he did ad I went to to my doctor and he gave me steroids to take and then I was referred for MIR scan which showed two new legions on my brain from the last time of my scan.Eventually i was put on a DMT which was maven clad. I now monitor my MS BY mir to monotor its progression. the vert last scan showed no new legions, haven't yet had the results from the MIR after that.
I went blind and blamed it on fotball and pinched nerve, then lost complete control of my right side, baaam hospital I went to be finally happily diagnosed with something because people said I was faking lol really.
A few years ago, I thought I had diabetes...my feet were itching & burning. I also thought I had liver damage...itching & fatigue. Soooo one should Always see a Real In person doctor rather than Dr. Google, lol Of course other symptoms left me in a state of the unknown which made things All too difficult to deal with.
When i first found out when i went in for migrains. They found a putuitary tumor but soon as it started shrinking from the medicarions they saw a lesion being covered by the tumor. I have trigeminal neuralgia, which is nerve pain in my face, light flares in my left eye. Which rhey say were symtoms of MS. Afterwards i started showing other symtoms like pins and needles in my arm, numbness, weakness, tiredness, tripping on myself. Went in and they did a test on my arm to see if it is carpal tunnel, nope. Then they did a scan of my spine and found more lesion.