Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Ipswich, UK

We have all had symptoms before diagnosis, some got us to the doctor sooner than others. The onset of my first symptoms made me feel that I had a brain tumour, and I prepared my mind to join 'the passed'. Five weeks later I was ecstatic to only have MS.

What are your stories for self diagnosis with this weird and wonderful condition?

June 24, 2020 (edited)
 · 
Reactions

Answer Summary

Members shared their journeys of self-diagnosing MS before receiving an official diagnosis, with many describing years of misdiagnosis ranging... Read more

Members shared their journeys of self-diagnosing MS before receiving an official diagnosis, with many describing years of misdiagnosis ranging from depression and inner ear infections to strokes and brain tumors. A recurring theme was the relief many felt upon receiving an MS diagnosis, with several members expressing gratitude that it was 'not a brain tumor' or cancer, and many described pushing through multiple specialists before finally being heard. Several members shared that symptoms like optic neuritis, numbness, vision loss, and balance issues were early warning signs that were often dismissed, and many found comfort in finally having an answer that explained years of confusing health struggles.

A MyMSTeam Member

I started to have short term memory loss. I was a production supervisor with excellent memory, remembered all the orders and never had to write a thing down. Them all of a sudden it seemed like I just couldn't retain information. I went golfing with my ex-husband and my brother and I was on the golf course crying because I couldn't remember how many time I hit the ball. I'm not a very good golfer. My husband at the time pushed me into going to the Dr. cause he was tired of me not being able to remember anything, so I went. I was diagnosed with a B12 deficiency and was told to see a neurologist. That'
s when I was first diagnosed, I chose to have a second opinion and I've been with that Dr. until he stopped practicing. I had an MRI which showed lesions on my brain, after talking with him I guess I had more symptoms than I knew. I had optic neuritis, which made my vision in one eye seem like I was going blind. They gave me a steroid which helped and my vision came back, but my neurologist said that is a symptom of MS, also numbness in my legs and feet. I thought it was the end of my world when I was diagnosed because I knew nothing about MS. I'm still going pretty strong 25 years later.

August 16, 2020
A MyMSTeam Member

When I was having a relapse this was when my vision became severely affected as all I could see were the optical lines as they were being transmitted and distorted like tenet were from and to my brain when I was looking at something but my optical lines were going haywire they were. Thats a good word to describe their action, I then went to see my MS nurse and she was able to assure me tshe was that my eyes were not infected but she did tell me she did to go to the optician she said and he said do I the same as her he did ad I went to to my doctor and he gave me steroids to take and then I was referred for MIR scan which showed two new legions on my brain from the last time of my scan.Eventually i was put on a DMT which was maven clad. I now monitor my MS BY mir to monotor its progression. the vert last scan showed no new legions, haven't yet had the results from the MIR after that.

July 6, 2020
A MyMSTeam Member

I went blind and blamed it on fotball and pinched nerve, then lost complete control of my right side, baaam hospital I went to be finally happily diagnosed with something because people said I was faking lol really.

August 19, 2020 (edited)
A MyMSTeam Member

A few years ago, I thought I had diabetes...my feet were itching & burning. I also thought I had liver damage...itching & fatigue. Soooo one should Always see a Real In person doctor rather than Dr. Google, lol Of course other symptoms left me in a state of the unknown which made things All too difficult to deal with.

August 15, 2020
A MyMSTeam Member

When i first found out when i went in for migrains. They found a putuitary tumor but soon as it started shrinking from the medicarions they saw a lesion being covered by the tumor. I have trigeminal neuralgia, which is nerve pain in my face, light flares in my left eye. Which rhey say were symtoms of MS. Afterwards i started showing other symtoms like pins and needles in my arm, numbness, weakness, tiredness, tripping on myself. Went in and they did a test on my arm to see if it is carpal tunnel, nope. Then they did a scan of my spine and found more lesion.

July 20, 2020

Related Questions

View All
A MyMSTeam Member asked a question 💭
Bastrop, TX

A MyMSTeam Member asked a question 💭
Austell, GA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In