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Has anyone here had successful or even hopeful treatment for MS-caused bowel dysfunction? Please don’t reply with a checklist variety of ideas like drink more fluids or eat more fiber! I’m talking about problems that have gotten way beyond much help with any of that Health Magazine, etc. kind of lightweight suggestions. They work for young and middle aged people, not for us in our 70s or 80s, after 50-some years of ongoing nerve damage due to MS
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Members dealing with MS-caused neurogenic bowel dysfunction shared the real frustrations of managing this condition long-term, with many... Read more
@A MyMSTeam Member Thank you. I have been tested, treated by Gastroenterologists for over 25 years now, in different departments of two different medical complexes. Kind of “out of tricks”But gastroparesis doesn’t sound like my symptoms fit. @MyMSTeam users... Thank you all for your responses and suggestions. Your timing is great, as I have a Zoom office visit with my GI NP later today, and will bring up all of the questions and solutions you all brought up. Thank you!
Here is an article I found, too, and I am wondering about (and will monitor progress toward) the repair of nerve damage and of the helpful implant of some kind of nerve activity booster-like solution that is suggested in the article as a yet unproven solution: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC62...
I have had a UTI and it's very painful so I would go for the mess. Why do you have to keep to your caths longer than normal. I have a spc and one model had to be replaced in 4 weeks. But when I got to this hospital I was fitted with a different cath and that has a 3 month timing.
I try to get my caths to last as long as possible so I (occasionally) reuse, then get dreaded UTI which is incont.x7, if there is something Much better than flomax my doc gives me I'm always open but am unsure which is worse; bulky mess or caths & UTIs, seems to alternate with dpp & temp.+ Stress type/level. Again, open.
Folic Acid. Is what i used. It did the trick.
I have gastroparesis and intestinal problems with pelvic floor dropped. After 4 years of this with 28 colonoscopies and useless treatments, I am now going to Cleveland Clinic in Weston fl to have them rebuild my digestive tract. Have you been checked for gastroparesis? I was just diagnosed with PPMS at age 63. It's in my brain the white and gray matter. So I'm becoming the forgetful grandma. If things don't change soon please check with a gastroenterologist. Hugs and prayers for you
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