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August 18, 2021
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A MyMSTeam Member

Not neccessarily typical, but it does happen.

August 18, 2021
A MyMSTeam Member

& my MS moved super fast .... in days rather than months. So there is no gradual symptoms as things slowly get worse; like “normal” MS.

Also MS gave me pain every where. In most cases that doesn’t happen.

I explain it like this “imagine everything your brain, spine & eyes control. MS can mess up anything those control. It is completely unpredictable & you never know if/when things will go wrong.”

August 19, 2021
A MyMSTeam Member

Oops I meant the only medication that has helped me is Tysabri.

August 19, 2021
A MyMSTeam Member

You got that right i am new but am i???? and have read tons of stuff about MS since being diagnosed and it still is mine blowing and I can’t figure out half of what’s going on. And i have great drs. But i still feel like they are as clueless as me. My MS dr is one of the best they say. I cant give a date when they think that my MS started because it was crazy… i had a head injury and that mimics MS

August 19, 2021 (edited)
A MyMSTeam Member

I know my MS flares up every late summer & fall ..... you know the hot months. So far the only medication I have found that prevents bad/new things going wrong is MS.

So maybe now it is time to invest in an AC unit if you don’t have one already. My hands/face go numb, I get extra nauseous, exhausted & my memory suffers starting at 78-79 F ..... if I’m in shade with a fan I can fudge it a bit up to 82F .... but it still takes it’s toll.

You might want to invest in an ice vest (or contact the MS society for help getting one) for those times when you absolutely must go out.

& yeah the insurance 💩 will drive anyone nuts. Do something you love every day; even if just for a few minutes every day. It helps you stay sane during stressful times.

August 18, 2021

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