Am I being a spaz? I’m very worried about getting really sick. Anyone who has personal experience with kesimpta have any feedback or tips. I also work with kindergarteners but am on a leave of absence at the moment. Considering I’ll be on these meds for a while I need to figure out the best solutions. Sorry for all of the questions! I appreciate your help! 😊
I've been on kesimpta since July of this year, and I really like it! I had a mild adjustment to it with the first dose because I also have asthma, and it can cause some respiratory suppression, but after that first time, every time I take it I have more energy and improvement with my balance and stability. I recently had updated MRI's from the first ones taken in 2019, and it showed that I didn't have any new or active lesions. My Dr. said that patients can have that result but still experience deterioration, (nature of the disease, not due to the treatment). I also have seriously modified my diet to embrace an anti-inflammatory diet, and what you read or hear (and may be sick of reading or hearing! :) ) about getting some type of activity everyday is actually true. I started having stiffness in my neck, shoulders and arms, and out of the blue came a journal article that asked if I was experiencing it and said that activity helped. I thought, "Sure, but I can barely get around with my upwalker!" But I set a goal to either go for a short walk at the local park, or if I need something at the store that equals the walk, every day, and I've noticed that afterward,the stiffness goes away and after I rest my legs, I can walk better later in the day. I worked at an elementary school as a Title One literacy instructor when I had a major episode the first couple months of my diagnosis, and I was afraid to go back to work around the kids for fear it would happen during groups. Fortunately, Spring break was the next week and then we went to remote learning for the remainder of 2020, but during that time I looked into CBD as an emergency treatment. I started taking broad spectrum CBD tincture (broad spectrum is THC free), and I haven't had another episode like that since (it was a possible seizure). I hope all of this helps!
Hi I'm on ziposa don't like it at all but key to fighting MS is eating right lots of veggies and salad low carb diet glentin free foods and green tea helps me and also excerise !!!!!
Ty for the feedback! Very much appreciated ❤️ I know everyone’s health is different when it comes to MS but I’m happy to be able to hear from people with actual experience in taking the meds and living with this everyday. Thanks again 😊