Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
South Saint Paul, MN

Hi! Has or is anyone on long term disability, if so, how hard was it to get and at what age?

January 19, 2022
 · 
Reactions
A MyMSTeam Member

I've been on SSDI twice, once in the 1980s after my first butt-kicking MS attack (late 20s), and then again in the 2000s (age late 40s/50s?). *Both* times they were denied the first round and I had to appeal.

In the 1980s one SS clerk told me that due to Reagan running up *massive* budget deficits he made a "cost savings" change to automatically deny anyone applying to SSDI for all but the most obvious cases. Reagan's cost-savings change still is in effect.

The one thing I'd caution about stopping work is that your "world" -- everything from circle of friends to the number of steps you take -- has a tendency to shrink. Guard against that and make a concerted effort to do more and push the envelope.

January 19, 2022 (edited)
A MyMSTeam Member

I seem to be the outlier. I was accepted on my first try, as was my husband. I filled out all the paperwork They expect you to exaggerate so I did. When the examiner saw I have. MS, I was was approved

January 19, 2022
A MyMSTeam Member

Hi
It took me about a year with a lawyer. I was first denied, second time with the lawyer. I had to go to the SSI doctor's. Then I needed my doctor's & my neurologist letters stating everything about my MS and everything that is included that's going on with my body from MS.
So best thing to do is get a Lawyer.
Good Luck
Sincerely
Michelle

January 19, 2022
A MyMSTeam Member

You need to contact your FMLA representative and notify them of your diagnosis if you haven't already. That'll protect your job.

January 21, 2022
A MyMSTeam Member

Hi NancyK it took me a while about 4 months you have to just keep trying get u a lawyer good luck

January 19, 2022

Related Questions

View All
A MyMSTeam Member asked a question 💭
South Saint Paul, MN