Does Anyone Have Trigeminal, Glossopharyngeal And Occipital Neuralgia. Sometime The Whole Three At Once.
Does Anyone Have Trigeminal, Glossopharyngeal And Occipital Neuralgia. Sometime The Whole Three At Once.
It’s a killer as there is no pain relief. I take tegratol and lyrica to control but not worKing. Anyone have ideas for relief.
I'm in the process of being evaluated for trigeminal neuroglia. When the pain was active, horrible! Thankfully it is currently in remission, I can't imagine dealing with that pain on a long term basis. It will come back so I'm also interested to learn if anyone has found something to help. Stay strong!
I have had 4 flareups of Trigeminal Neuralgia, 1-2 a year then it will skip a year. My Neurologist and I have narrowed the medications I now take for the pain .They do not always work so we have to change them around. I have taken the following meds but not all at once but in combinations. Tylenol, Gabapentin, Tramadol, Baclofen, and Carbamazepine. I advise you to work with your Neurologist to find the best combination as I know the pain is very strong and you cannot describe it to anyone.
I was diagnosed with trigeminal neuralgia in august. Its absolutely horrible. I am on baclofen and oxycarzepine- i butchered the second one. First was on oxycarzepine and it didnt help. Once the dr put me on baclofen also it was a game changer.
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