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Does Anyone Have Trigeminal, Glossopharyngeal And Occipital Neuralgia. Sometime The Whole Three At Once.

Does Anyone Have Trigeminal, Glossopharyngeal And Occipital Neuralgia. Sometime The Whole Three At Once.

It’s a killer as there is no pain relief. I take tegratol and lyrica to control but not worKing. Anyone have ideas for relief.

posted February 4
A MyMSTeam Member

I'm in the process of being evaluated for trigeminal neuroglia. When the pain was active, horrible! Thankfully it is currently in remission, I can't imagine dealing with that pain on a long term basis. It will come back so I'm also interested to learn if anyone has found something to help. Stay strong!

posted February 4
A MyMSTeam Member

I have had 4 flareups of Trigeminal Neuralgia, 1-2 a year then it will skip a year. My Neurologist and I have narrowed the medications I now take for the pain .They do not always work so we have to change them around. I have taken the following meds but not all at once but in combinations. Tylenol, Gabapentin, Tramadol, Baclofen, and Carbamazepine. I advise you to work with your Neurologist to find the best combination as I know the pain is very strong and you cannot describe it to anyone.

posted February 21
A MyMSTeam Member

I was diagnosed with trigeminal neuralgia in august. Its absolutely horrible. I am on baclofen and oxycarzepine- i butchered the second one. First was on oxycarzepine and it didnt help. Once the dr put me on baclofen also it was a game changer.

posted February 4

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