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Hello @A MyMSTeam Member It’s a difficult pain to describe. I have a lot of nerve pain in different body places, but trigeminal neuralgia is one of the most intense, excruciating pains. The only way I can describe it is that it’s like an intense, prolonged electric shock that starts in one spot (near my right ear) and then gradually spreads across my face. For me it was also a pulsating pain so it would gradually ease and then a couple of minutes later would pulse again. It has me rocking and sobbing. I have not had a flare for a few years now (🤞🏻) but I have freezing cold, painful sensations across my face which the neurologist said is due to the previous attacks. Do bear in mind this is just my experience, others may have a different experience. Hope this is helpful. 💜
Do you experience trigeminal neuralgia?
Yes, many people with MS experience trigeminal neuralgia (TN). Between 4 percent and 6 percent of people with MS are diagnosed with TN, making it 400 times more common in the MS population than in the general population.
More than 41,000 MyMSTeam members report experiencing pain or Show Full Answer
And stress of course! 💜
When it flares, carbomazepine. When it’s calmer Gabapentin helps. I also use warm compresses, I wear soft, fleece snoods pulled up over my face outdoors. I avoid triggers which for me are: small drop in temperatures, cool breeze will trigger it; overdoing it; lack of sleep and believe it or not talking and listening on the telephone! 💜
How are u managing the pain
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