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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Long Did You Wait To Get On A DMT And Did You Have To Take Off Work?

How Long Did You Wait To Get On A DMT And Did You Have To Take Off Work?

Hi Everyone, I was recently diagnosed with MS. I started Tecfidera and it made me extremely sick (vomiting, stomach pain, flushing, ms symptoms are worse). I could not eat for 48 hours so my doctor told me to stop taking it. I was wondering how long did you wait to get on a DMT after diagnosis? Did you take time off work while trying DMTs or trying to stabilize? What DMT works for you?

posted 4 months ago
A MyMSTeam Member said:

I agree w/ flechlerk..but I got really sick when I was first diagnosed in 1995..went off drugs for 10 years & lived in the gym .became a gym rat...but take meds ..there are so many now..when I got diagnosed there wasn't what there is now ..so many drugs! I only had one & chose not to do it..many moons ago .but get on a drug that don't make u sick! God Bless!

posted 4 months ago
A MyMSTeam Member said:

What works for one person doesn’t always work for someone else. We have to be our own advocates, if you don’t nobody else will! 🤞

posted 4 months ago
A MyMSTeam Member said:

Get another therapy..so man t drugs now..tell ur doc ur getting sick plz! Plz! PlZ!

posted 4 months ago
A MyMSTeam Member said:

I, do not do and Traditional MS Medicines.

posted 4 months ago
A MyMSTeam Member said:

When I was diagnosed in 2001 I was placed on Avonex which helped me for several years. Now I have have progressed to secondary progressive ms. I was doing an infusion but it is not working. I know that HostDefense. com produces capsules or powder of Reishi mushroom which many people take for ms. I am going to try it. I already take lions mane mushroom for cog. fog and it helps me tremendously.

posted 4 months ago
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