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A MyMSTeam Member asked a question 💭
Sunderland, MA

Like someone driving an ice pick into the ear. I have been examined for inner ear infections and that is not the cause. The ear exams always report healthy and clear.

November 4, 2022
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A MyMSTeam Member

cause? I don't think I would call them that. PHANTOMS
- MY "THEORY"
whatever it is, nothing is actually happening but for the false sending of signals to cause agony in various locations in the body
It happens to me. hatpins, knitting needles and ice picks (depends on the size that it feels like)
I get them through my arms, through my thighs, through my ears, through my eyes, through the hollows at the back of my head, under my collarbone
sound familiar?
anyone else?

November 4, 2022
A MyMSTeam Member

There are no nerves that are off limits to this disease. It will attack at its discretion whatever and wherever. There is no rhyme or reason. It is unrelenting. Ears included. Then it runs and hides. Waiting to ambush you again. I realize this is not a clinical answer. I am a patient too. Hope it helps.

November 4, 2022
A MyMSTeam Member

My @A MyMSTeam Member, I've been there. About 20 years ago I was positive I had an ear infection. Severe pain in my left ear, if I turned my head too fast I got dizzy, etc. I saw three different doctors. Every one of them told me my ears were fine, and I didn't believe any of them. Finally I went to doctor #4. Again, she told me my ears were fine. As I was turning to leave her office I got hit with a wave of dizziness so strong that she had to grab me to keep me from falling over. She wouldn't let me drive home by myself, she insisted that I call a friend to come pick me up. And, guess what was finally dx'd? It was an MS attack, and I had to do 3 days worth of IV Solumedrol. My neurologist told me that the next time something weird happened, I should call him first. This cruddy disease can strike in so many ways, so please honey, call your neurologist before things get any worse, okay? Take care of you! Lisa 💖

November 4, 2022 (edited)
A MyMSTeam Member

It might be related to trigeminal neuralgia.

November 4, 2022
A MyMSTeam Member

Don’t wait for the relapse, see if you can cut it off at the pass? Cognitive excercise and rest may help?

December 30, 2022

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A MyMSTeam Member asked a question 💭
Sunderland, MA

A MyMSTeam Member asked a question 💭
Sunderland, MA