RRMS it's taken a long time to be on the right meds. So I'm not having big bouts anymore. It's taken me along time to work out I need to rest and not worry about anything else. I still work part time so I guess I'm lucky to be able to. But there has been times that I can't

12 years ago my MS specialist said he thought I had PP and wanted to send me to an MS specialist that was doing a study on PP, so I went to him and he was such a self righteous man and told me everyone starts out as RR…..

Was diagnosed in 2015 with RRMS. Treatments tried Copaxone, Rebif and Lemtrada. Medications have all failed in some aspects. Ms has changed my life because i can no longer have a full time job, ive become isolated and misunderstood by many. I suffer with pain, mental health problems and sadness most days. My medication list is growing and i cant seem to find happiness. However theres always someone worse off i guess

I was diagnosed with PPMS in November 2021 after 15 years of trying to get the pain from the MS Hug diagnosed. I was starting to have difficulty walking 2 years prior to diagnosis. I now take Gabapentin for pain which sometimes work meaning that the dose that works makes me too drowsy to function so I can’t take it during work hours.

I take Ampyra (Fampyra in the US) for walking and mobility and it has helped tremendously. It’s stimulant effect also helps with my exhaustion. I can’t move if I miss a dose. I’ve had two doses of Ocrevus and there was no increase in size of lesions and no new lesions on my last MRI. My neurologist declared me stable in April.

I was diagnosed with, thank goodness because the first doc thought my issues resulted from a brain tumor, in 2004 with RRMS. I changed DMDs 3 times over the first decade + after diagnosis but known made me feel right until my 4th DMD of Rituximab. I now feel the treatment is working for me. It truly comes down to what that means to the individual. After my first dose of Rituximab, I felt steadier on my feet. I can't explain that better, it's just a very good thinking and I don't feel like I'm going to fall every time I stand. This disease will progress no matter what as DMD stands for Disease Modifying Drug so DMDs won't rid you of MS. As such, the way my life has changed post diagnosis has changed over time. With this said, there are some things that changed that I'm not for changing back. Maintaining a positive attitude for the most part is key for me. As is watching what I eat and drink is also very important to how I feel on a daily basis. A very hard thing for me to learn was to listen to my body and then actually follow what I'm saying to myself. This can be stuff I eat that immediately puts me to sleep (probably not good for me), when my body screams at me to take 5 (I may have pushed through before diagnosis but have learned that won't work so taking a brief break vs. needing to take a long break later), to continue to exercise most days of the week to maintain wasn't I haven't lost. What's great about MS is that it's ever changing and what your issues are today may not be what your issues are tomorrow. That excites me!