Hi all! I've been under investigation for MS for 1 years now, and suddenly my neurologist decided to move forward and leave me with a working diagnosis of Functional Neurological Disorder. I'm feeling quite devastated as I'm aware of having 9 lesions in my brain (nonspecific, not progressing over 2 years), clear spinal tap, and a long list of symptoms that match perfectly with MS. I'm only on pain medication, which doesn't always help. My neurologist said there is pretty much nothing else that… read more
I’m with you . Was diagnosed five years ago with RRMS after they diagnose speed with stage four cancer I’ve been taking the Rebif shots drugs MS. This whole time went to a new doctor cause I moved and he said he couldn’t see any lesions on my brain or my neck, but they were there before so it took me off . Rebif and said I had fnd , then said it was in my head , I lost it , I don’t have MS ?and I was on that drug then who do I sue? Where if I do have MS and he tried to misdiagnose me again who ???
Elilussier,
I don’t know where you got your information about New Brunswick and the mystery disease but it is not MS. Instead everything I found on it said Alzheimer's, Lewy body dementia, post concussion, and cancer, and, according to Health Minister Dorothy Shephard, represent a group of "misclassified diagnoses“. The only thing I found about increased MS diagnose’s is right along with the increase of population and people who do have MS are living longer. But I’d be interested to know where you got your information
Imagine that: in New Brunswick (canada) there is a lot of new cases of ms ( the numbers are devastating) at a point that a neurologist (I think more than one but not sure) was telling is patients, even the news, that there is a NEW sickness of the brain only in NB. That it was serious, because those people are disabled by something so strange. There was a team who investigated for quite a while and after all this we learned that it was all MS... So ask a reevaluation by another doctor. That's all * if someone as a little time on their hand, it's quite funny now to see the importance for them to have found a new condition... But the number of new cases is really unheard of. Good luck , have a nice day
Hi Tiffaney, thank you so much, it helps a lot! My neurologist wants his colleague to look at me, but this doctor is a specialist in FND, hence I feel like he will be inclined towards confirming that it actually is FND. I will see this person, but I will also look for someone else (independent from my current team).