Powered By
Neurology diagnosed me as FND with continued monitoring, My question is, Has anyone else been diagnosed FND at first and then eventually end up with ms diagnosis later?
I did have the spinal tap back in December of 2025, Came back with elevated protein and glucose, Had an Abnormal Result on a Mutiple Sclerosis Panel 2, An Abnormal Result showing I had the Epstein-Barre virus Past Result. I then had a genetic genome test that did show variants on ALS, MS and Parkinsons I have also had all these symptoms progressing for a year. I read alot of research about genetic testing for neurological health that it is still developing as understanding of those 3 are understood better. Since the FND diagnosis , having spinal lesions, and those tests makes me wonder what anyone else may have gone through diagnosis wise. I really I was able to answer any questions, I am happy to answer any questions you may still have.
It can be so frustrating trying to get a clear diagnosis. Ive had similar experiences when they just brush off what you tell them.
I hope there is somebody on here who has/had FND diagnosis and MS who can share their experiences with you.
Stay strong and keep on advocating for yourself. You are not alone 🤗
MS and FND can co-exist. FND does not explain your thoracic spine lesions - have you been told why you have those @A MyMSTeam Member? 🤗💜
Have you had a spinal tap? @A MyMSTeam Member and @A MyMSTeam Member I went many years with different specialist and wasn’t fully diagnosed until I had the spinal tap.
@A MyMSTeam Member They are claiming my lesions as a syrinx but they are continuing to monitor for changes, and a syrinx is 1-8 people in every 100,000 people that have a true syrinx, Also neurosurgeon told me that a syrinx does not explain all of my symptoms, It is why I am curious with the question I asked, I have looked into a lot of things since it seems like doctors do not seem to care anymore about their patients, at least in Pa they don't. I have kept track of each symptom as best I could as they appear, but they skim over it when I show thwm so I figured this would be thw best place to see what others have may had the same experience.
Join
Your Privacy Choices
