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Diagnosed with MS at age 50. Since then I've been told it is a demyelinating disease but not as severe as MS

A MyMSTeam Member asked a question 💭
Menomonee Falls, WI

My current neurologist is negative about all of this. He doesn't explain what is wrong with me. I can't walk without assistance . I lose orientation. My balance is way off. My sight has changed & I got glasses. After 6 months I couldn't read very well. Can't see tv too well. I have had several mental health tests and I am told that I don't have dementia or Alzheimers. I am confused at timesto and forgetful. I am 77. If I don't get enough sleep I am worse . I also have Chronic CKD .5… read more

February 4, 2023
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A MyMSTeam Member

SusanKring, I feel you should shop around for a better qualified doctor who is up front with you about your health. Sometimes you have to go to many before you feel one is sensitive to your needs. You will know when you find him. He will answer all your questions with respect.

February 4, 2023
A MyMSTeam Member

I don't know will this help but in hospital I met someone who didn't have demyelination of cns but pns and she was taking IVIG for her problems. There are many diseases caused by demyelination. Hope you'll get better soon!

February 5, 2023
A MyMSTeam Member

Thank you. I will be doing that. When the MRI dept asked the dr why I need this MRI.. He said I had pain in my leg
He forgot me. I've been his patient for ten years!!

February 4, 2023
MyMSTeam

It sounds like you might be referring to a condition similar to ADEM (acute disseminated encephalomyelitis), which is also a demyelinating disease but typically less severe than MS. Here are some key points from the knowledge base:

- ADEM vs. MS: Both are demyelinating diseases, meaning they attack the myelin sheath around Show Full Answer

It sounds like you might be referring to a condition similar to ADEM (acute disseminated encephalomyelitis), which is also a demyelinating disease but typically less severe than MS. Here are some key points from the knowledge base:

- ADEM vs. MS: Both are demyelinating diseases, meaning they attack the myelin sheath around nerve fibers.
- Symptoms: Both can present with muscle weakness, numbness, loss of vision, and loss of balance.
- Course of Disease:
- MS: Chronic and can involve relapses or gradual progression.
- ADEM: Usually a single immune reaction and often occurs just once.

For a precise diagnosis and treatment plan, consulting with a neurology expert is essential.

July 28, 2024

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