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A MyMSTeam Member asked a question ๐Ÿ’ญ
Canada, CO

My son is 21, and has MS. His symptoms are numbness in his left foot, hand, ear, and sometimes double vision. Is there some medication, supplement, to cure MS? What about Stem Cell Therapy? Is there remyelinating therapies that someone has found helpful? What are the experiences with Biotin? Is there something to stop double vision? I have no answers to all these questions. Thank you

February 13, 2023
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A MyMSTeam Member

I started eating a lot of Biotin due to the studies on it. I stopped after a few months. As I recall the studies came to the conclusion it was no magic cure -- but it does help with hair and nails! ๐Ÿ™‚ I still eat Biotin daily for that reason.

Stem cell therapy has loads of potential, but that's it -- it's potential. Plus you have to go overseas for treatment. It's highly experimental and rip-off schemes are common. In X years it might be different but not now.

If you're in the realm of hoping, a better thing to hope for is "re-myelinating" drugs, drugs that rebuild our nerve coatings. Some are being tested today (https://clinicaltrials.gov/ct2/results?term=rem...) and the guess is that they're 5 years or so off. While they wouldn't be a "cure," they might be able to rebuild our nerves faster than MS is destroying them -- a de facto cure.

For optic neuritis, I am hit by this too. (My first attack in my 20s left me blind for about a week.) I'd recommend eating *lots* and *lots* of greens (all types, iceberg lettuce doesn't count) and other veggies that are high in vitamin A.

Dr. Terry Wahls, who suffers from MS herself, in her "Wahls Protocol" (https://www.amazon.com/Wahls-Protocol-Autoimmun...) MS diet recommends eating 9 cups of greens per day -- that's really a *lot*. I followed an early version of that diet for just over a year. In that time my distance vision improved to *better* than 20/20.

But I would definitely recommend adopting some sort of MS diet. Here's one: (https://www.direct-ms.org/nutrition/recommendat...).

February 13, 2023 (edited)
A MyMSTeam Member

Meclizine helps with double vision and vertigo. Its the main ingredient in dramamine and you can buy it generic cheap.

February 14, 2023
A MyMSTeam Member

There is no cure. MS for Dummies is a helpful book.

February 13, 2023
A MyMSTeam Member

Interesting

February 14, 2023
A MyMSTeam Member

I just learned of a study Dr Tom Macdonald did where he took 10 deceased ms patients and did autopsies on their brains. All 10 of them had parasites in the csf or neurons. Worth looking into. Iโ€™m still trying to find a doctor that will treat something like this as it is clearly not mainstream medical information, but it makes sense to me.

February 14, 2023

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