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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Elk River, MN

This usually happens when I get overly warm, stressed out, or weather system moving in

February 27, 2023
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A MyMSTeam Member

@A MyMSTeam Member I have actually had one for over 11 years. They wanted it to be replaced every 5 years with the older model. The 2nd pump was actually a larger capacity. I strongly recommend it. My headaches were getting so bad from the high dose of oral baclofen. I have to go in and get my pump filled every 6 weeks. It's about the size of a hockey puck and was surgically put under the skin in my abdomen. There is a catheter that is directly inserted in my spinal fluid. No headaches.

February 27, 2023
A MyMSTeam Member

Many MS people have the curled up toes. They call them "hammer toes"

February 28, 2023
A MyMSTeam Member

> I have actually had one for over 11 years.

Oh cool! That's one thing I've wondered about -- the longevity angle. I seem to tolerate the oral stuff well (I eat 240mg/day) but I know it's a hassle for my doctors prescribing that much. My kidneys seem to process that well enough.

> I strongly recommend it.

Again, that's great to hear. I figure that sooner or later that's a road I'm going to go down.

February 27, 2023
A MyMSTeam Member

That's exactly how my initial MS doctor suspected I had MS.

February 27, 2023
A MyMSTeam Member

I know that if someone tests your feet reaction by scraping up the bottom of your feet heal to toe normally your toes would go down but I know mine having MS curl up.

February 27, 2023

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A MyMSTeam Member asked a question 💭
Huntsville, MO