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In March my neurologist of 4 yrs informed me that MS diagnostic criteria was changed in 2017 and that I do not meet the criteria, she is changing my diagnosis.
I still have the symptoms that were attributed to MS.
I have MCTD with lupus/RA/sjogrens overlap syndrome so now my Rheumatologist is investigating what is what.
I am glad I don’t have MS, but I am concerned it took 5 yrs to inform me.
Has anyone else had a similar experience?
Darlene😊
The McDonald criteria are used to diagnose multiple sclerosis (MS) and have been updated over the years to improve accuracy and reduce misdiagnosis. Here are some key points:
- Purpose: Helps diagnose MS earlier, allowing for quicker treatment to slow disease progression and prevent permanent damage
- 2017 Update: The Show Full Answer
Why did your doctor say this? I’m in limbo right now. I have no O bands but my iGg index is high and my synthetic rate is high on my MS panel so technically I’m still not MS diagnosed and I have to wait till Monday to find out what is next. I have lesions and white matter all over my mri also and a lot of the MS symptoms. So confused and just want answers like everyone else ! Good luck to you !
I’ve had differing opinions- based off medical tests - one of which I personally believe bears redoing. But excessive brain lesions and bands in my spinal fluid, along with losing my vision, incontinence, visual/spatial issues made me comfortable it was ms. It usually takes years to get a diagnosis of ms but I think the diseases you mention are still autoimmune related most likely with similar symptoms so I can understand some confusion but I’m not without criticism of your neurologist. I hope you get the correct care you need and please don’t forget all you learned in your journey w MS diagnosis. Hugs, hugs, hugs.
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