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I've seen all kinds of talk about heat being an issue but for me it's opposite, I have extreme cold sensitivity like insanely odd as temps lower than 85-90 and I'm freezing to death. And of course the slightest hint over 65 and my other half is complaining it's HOT while I'm over here FN teeth chattering shivering .😒🤦🏻♀️ I've tried wrapping up in heated blankets, heating pads, those hot hands warmers, a rechargeable heat bank hand warmer and it's like nothing helps😭. Please tell me I'm not the… read more
My temperature regulation is crap now. Fights over the thermostat are common now. Lol Before MS mh hands could at times get crazy cold usually if outside. I do wonder if I have a touch of Raynaud's syndrome to boot... you are def not going crazy.
Cold sensitivity is a common issue for people with MS. Many individuals experience cold hands and feet, even when using heated blankets or layering up. This can be due to the body's response to temperature changes, which can exacerbate MS symptoms. One MyMSTeam member mentioned, “My feet have been ‘cold’ all my life! Now Show Full Answer
@A MyMSTeam Member mine don't turn colors they just feel like ice quite often. Even under multiple heating devices. Back when I was walking an hour to and from my 2 jobs I chalked it up to just the hour long walk in the freezing cold. But now it isn't even that cold and they're turning into ice 🥹. Definitely need to bring it up to my MS navigator and see what she recommends as warming techniques aren't working (not even rubbing/massaging the affected areas)
@A MyMSTeam Member my hands and feet will feel like straight ice but the rest of my body for the most part is normal temps. Tried just about every trick to regulate blood to my hands and feet and nothing helps. Probably going to have to contact my navigator to see if there's anything I can take that can help regulate all over temp as the only ice feeling I normally feel is in my hands and feet🥹.
@A MyMSTeam Member ill definitely have to keep that medication in mind. I have noticed I've always been cold my whole life before they were saying it was anemia but after significant tests that was ruled out as a possibility now. It's like ms decided I'm just gonna live life freezing to death the rest of my time on earth 😒. Sometimes I wish I had my other halfs regulation bc he's always freaking hot even at normal temps. But we were also born in VERY DIFFERENT climates (me down south and him way up north🤭🤣. I always joke that my body was not designed for this bipolar ky weather and I'd rather be home down south (but he'd absolutely die down there🤣).
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