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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Colchester, UK

Had symptoms for a number of years, but never thought too much about it, then during the last few months inability to walk any distance and balance got worse. Spoke to docs which led to MRI Scans and lumber puncture, then last week was diagnosed with PPMS. Not sure how I feel, so many thoughts and questions, with the long term future uncertain, it's kinda scarey.

April 22, 2024
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A MyMSTeam Member

It gets better sometimes but keep pushing forward you might stumble and fall!!! Its mind over matter if you don't mind it don't matter😂😃 gotta love our new life.

April 22, 2024
A MyMSTeam Member

I have PPMS and had similar diagnosis 13 years ago. Numb foot, limping, etc. I really went downhill quickly for a couple years as the disease progressed. After a couple drugs didn’t work and had lots of side effects, I got on Ocrevus as soon as it was available. I haven’t gotten any worse, since! It worked well for me.

May 25, 2024
MyMSTeam

Are you seeking information on how primary progressive multiple sclerosis (PPMS) is diagnosed? Here's a detailed explanation:

1. **Medical History and Physical Examination**: The process begins with a thorough review of your medical history and a physical examination by a healthcare professional.

2. **MRI Scans** Show Full Answer

Are you seeking information on how primary progressive multiple sclerosis (PPMS) is diagnosed? Here's a detailed explanation:

1. **Medical History and Physical Examination**: The process begins with a thorough review of your medical history and a physical examination by a healthcare professional.

2. **MRI Scans**: Magnetic Resonance Imaging (MRI) is crucial for diagnosing PPMS. It helps in identifying lesions in the central nervous system that are typical of MS.

3. **Spinal Tap (Lumbar Puncture)**: This procedure involves drawing fluid from the spinal canal to look for abnormalities linked to MS, such as the presence of oligoclonal bands.

4. **Observation of Symptoms**: Unlike other forms of MS, PPMS is characterized by a steady progression of symptoms without relapses and remissions.

These steps help in confirming the diagnosis of PPMS, considering its unique characteristics compared to other types of MS.

April 22, 2024

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