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PPMS, 15 years in and loving it!

May 8, 2024
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A MyMSTeam Member

Everything is battle in life, I’m not a so called “ms warrior” I don’t call myself that and never will it’s lame, doesn’t empower me in anyway

May 9, 2024
A MyMSTeam Member

A great question. Being at war with MS is not being at war WITH yourself, but FOR yourself. Certainly the MS affects you, but it never becomes you. Plus ... there are definitely days when waging a war is just too overwhelming. Too tired, weak, can't see well, feet are numb, legs are tingly, dread each trip to the bathroom, add your particular symptoms ... "Warrior"me is on leave. And then ... Angry, Scared, and Sad me need some leave time too. sigh No magic fixes. Knowing what things make it worse and avoiding them as much as you can ... bottom line that's the best anyone can do. And most humans can't do it ALL the time. Wish you the best. ❤️

May 9, 2024
A MyMSTeam Member

I don't think of it as a war or myself as a warrior. I know several people with uncurable diseases. We are all people just trying to get through life the best we can. We all have different struggles but if we help each other when we can, life is a little better, no matter what we are going through.

May 9, 2024
A MyMSTeam Member

I agreeDenzie-I don’t think of it as a war - life itself can be hard and difficult but it also can be lovey, fun, exciting, all those good things that life is all about.

May 9, 2024
MyMSTeam

The language of "fighting" or being "at war" with MS often comes from a place of wanting to empower individuals and convey a sense of resilience against the challenges posed by the condition. It's a metaphor used to express the ongoing effort and determination required to manage the symptoms and impacts of multiple Show Full Answer

The language of "fighting" or being "at war" with MS often comes from a place of wanting to empower individuals and convey a sense of resilience against the challenges posed by the condition. It's a metaphor used to express the ongoing effort and determination required to manage the symptoms and impacts of multiple sclerosis. However, it's important to recognize that this terminology might not resonate with everyone. Some might find it exhausting or overly aggressive, preferring to view their experience with MS as a journey of adaptation and acceptance rather than constant battle. It's all about finding the language that best supports one’s emotional and mental well-being while navigating the condition.

May 8, 2024

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Los Angeles, CA