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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Oxford, OH

I’m 72 , had CSIs starting at age 21 consisting of severe calf pain, another one age 50 consisting of optic neuritis and one with severe right leg weakness during high temperature in Florida in 2014 when I was diagnosed with PPMS. My main problems are spasticity in LEs, balance and walking. I feel I have bouts of increased fatigue, and difficulty walking for approximately 18-24 hrs before returning to my baseline.

June 22, 2024
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A MyMSTeam Member

i’d say you probably are spms
especially since. you had optic neuritis that resolved. but i’m not a doc and my opinion is everyone is affected differently

If you have PPMS, you will experience gradually worsening neurologic symptoms and an accumulation of disability. You will not have relapses early in the disease course. You also will not have remissions.PPMS can be characterized as either active (with an occasional relapse and/or evidence of new magnetic resonance imaging (MRI) activity over a specified period of time) or not active, as well as with progression (evidence of disability accrual over time, with or without relapse or new MRI activity) or without progression.

October 3, 2024 (edited)
A MyMSTeam Member

PS. What are CSIs?

June 22, 2024
A MyMSTeam Member

No. It would be active secondary progressive if having flares aka relapses.

June 22, 2024 (edited)
MyMSTeam

Yes, it is possible, though rare, for individuals diagnosed with primary progressive multiple sclerosis (PPMS) to experience relapses. This condition is referred to as progressive-relapsing MS (PRMS). In PRMS, individuals meet the criteria for PPMS but also experience occasional relapses.

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

Progressive-Relapsing MS (PRMS): Causes, Symptoms, and More | MyMSTeam
MS Flare-Ups and Managing Relapses | MyMSTeam
June 22, 2024

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