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I was told by my neurologist the number doesn't matter, but location is more important
I think most Drs downplayed numbers. I got answers like a few...several or a couple. I stopped asking. It was likely always changing. Key words today if you have a new MRI is "No New Ones"...that what we want to hear.
Hey @A MyMSTeam Member, how are things in the City of Angels? Things in Northern Virginia are okay. All the kids are back at school from their fall breaks and our nest is empty, except for Maisy. Maisy got a bath earlier.
I do agree, it really isn't about the number of lesions you have, it's really about your symptoms.
I know for me, it's the brain fog and feeling like there's a baseball inside my mouth when I talk. I forget so much and then ontop of it, I'm always jumbling words. I often think that when I'm speaking with somone, that I sound drunk, especially to people that don't know me or my diagnosis. Sometimes I joke, and I apologize for my MS brain and mouth... but it sucks.
Dale, it's the very first time that I heard someone say that lesions 'can eb and flow in some individuals'.... Also, I just do not get it, on what basis is decided that someone is 'promoted' to SP than PP (like in my case), although I am not too bad off in comparison? OK, 'working life' has ended quite a few years ago (61 now) although I am still 'independent', enormously helped by the fact that I am still in a stable relationship which helps enormously.... Still, it makes me think about contacting whoever decides about one and another these days, this to establish that I am one of those who in spite of the PPMS diagnosis many years ago, is not doing too bad.... Is it because of the meds I have been described at te time, and still use for most of it? BTW, he, Mr R Martin, DID tell me at the time that one of the meds prescribed, Simvastatin, was in an experimental phase, perhaps I am proof that it slowed down the MS or? Who knows, just exchanging info, take care.
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