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A MyMSTeam Member asked a question 💭
Paw Paw, MI
January 20, 2025
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A MyMSTeam Member

Yes yes

January 23, 2025
A MyMSTeam Member

Yep tends to be the first option for a lot of DR's , I find they helped my recovery time , horrible copperish taste in the mouth , and long term use is not an option but ya need to google that one . Otherwise nothing to it, IV time,take a book or laptop etc,it's boring and breath mints ect.(help the taste)

January 23, 2025
A MyMSTeam Member

Hi! I have had several infusions starting with the first time I was hospitalized (blindness- thought it was a brain tumor but found brain lesions instead) The one thing to impress upon you is the steroid (mine is solumedrol) infusion will send your blood sugar skyrocketing. In hospital I was even given insulin to bring it down. Now it rises to upper 400-lower 500 range which is dangerous and about 10 to 12 hours past my infusion time which sadly is midnight to 2am then usually starts to fall 2 to 3 hours later. But one time it didn’t and I ended up in the emergency room. So please be alert to this. Another thing- and this is just odd- you get a metallic taste - and depending on the infusion strength/dilution, you can really not feel very well immediately afterwards. I find if they use a bigger saline bag with the same amount of steroid it helps how I feel afterwards. Overall it helps- but I am concerned about long term use. I don’t have great confidence in my neurologist. Truly best wishes!

January 23, 2025
A MyMSTeam Member

So how did you know when you needed infusion?

January 23, 2025
A MyMSTeam Member

Yes so so many times. It’s a miracle. I try not to get it too often because it’ll lose its ability the more you take it, but for a bad flare up- you’ll be feeling much better very soon- AND have a lot of energy

January 20, 2025

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