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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Springfield, OH

The other day my daughter and I happened were in the same room. She started yelling at our dog to go to his bed because he kept begging for food. Once she started yelling, I started collapsing. Literally. She yelled and I folded like a piece of limp bacon. It was hands down THE most bizarre experiene ever!! Honestly we were both laughing hysterically because I had zero control over any part of my body. She would yell and down I'd go. Crumple right to the floor which I only didn't hit because she… read more

January 21, 2025 (edited)
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A MyMSTeam Member

I have ADHD Severely,Autism High functioning and now RRMS but I'm good with noises matter of fact I think I might be going deaf cause if it aint a 30 on the tv volume I can't hear it I take Tysabri once a month infusion any body else? You know I'd rather take once a month infusion then take daily cause I would easily forget also my neurologist Dr. Farrow told me if I take it I can't switch you know I only had mine for a year and I resigned/quit my job cause my neurologist told me do to my gait that I need to use a rollator at all times well the job I had rollators were banned so everyday when I was working I couldn't use it st work so last year on Aug 27 I quityou know I thought when I quit I'd getunemployment til my ssdi kicked in but that didn't happen cause in order for you to get unemployment you have to go back to work eventually well I wasn't so I went into a depression and felt like a leech cause I was staying with my wife and kids and she was having to pay all the bills where before I did but good thing now they working on my case the ssdi people so thats good anybody have real bad fatigue do to their ms I sleep like an old man take 2-3 hr naps through the day and I'm just 37 also do yall take generic version of ampyra for walking Dalfampridine I stopped cause I was still falling alot I mean recently I fell trying to clean up a spill on the floor Damn I hate RRMS you knowmy infusion nurse Janee she had ms longer than me she said I progressed alot faster than her is anybody else in the same boat as me? Well I'm get off here and go to bed also I wasn't good in english class thats why theres no periods

January 22, 2025
A MyMSTeam Member

I have no other reasons to all my self to be upset . Joy is all I am and joy is was made , if I have to have this Ms no choose , then I choose joy no matter what , it’s to easy to catch that shitty day vibe , I choose not to have ! No matter whai I still smell good , roll down a hill. “ still smell good fall into trash. “ I still smell good lol love that commercial

January 29, 2025
A MyMSTeam Member

I can easily become overwhelmed (BY too b much external) stimulation!]

January 22, 2025
A MyMSTeam Member

Yes. I get overwhelmed and frustrated quite easily. When that happens my inability to focus on anything gets dramatically worse and my usual MS fatigue escalates to the point where it’s almost impossible to keep my eyes open. Sometimes it is multitasking that triggers it. Other times it is someone trying to get me to understand what they are talking about and their frustration with me not “getting it”. Still other times it’s just triggered because of too many things going on around me and a feeling that my brain is slowing down the processing in an attempt to make sense of everything, but still failing (instead of focusing on one thing and ignoring everything else). Instead of doing one thing well my brain ends up doing a poor job with everything and that is exhausting.

January 22, 2025
A MyMSTeam Member

I do sometimes at doctors visits. That is why hubby comes with me.

January 22, 2025

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