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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 24, 2025
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A MyMSTeam Member

Yes, heat regulation is a major issue for many, some with heat and some with cold.

May 25, 2025
MyMSTeam

Yes, temperature regulation problems are common with MS. While many people focus on heat sensitivity, cold sensitivity affects quite a few people with MS as well. A recent study found that 29% of people with MS experience both heat and cold sensitivity, while 13% are sensitive to cold temperatures only.

The reason for cold Show Full Answer

Yes, temperature regulation problems are common with MS. While many people focus on heat sensitivity, cold sensitivity affects quite a few people with MS as well. A recent study found that 29% of people with MS experience both heat and cold sensitivity, while 13% are sensitive to cold temperatures only.

The reason for cold sensitivity in MS may be related to nerve damage. When MS causes damage to the protective myelin sheath around nerves (demyelination), it can affect how your body regulates temperature. This can make you more susceptible to both overheating and getting too cold. If you're experiencing severe cold sensitivity, it's important to take precautions. Some helpful strategies include:
- Keeping your body moving to generate internal heat
- Using electric blankets
- Maintaining a warmer room temperature (some people need it as high as 80 degrees)
- Reaching out to your neurology team if symptoms are severe, as hypothermia can be dangerous when body temperature drops below 95 degrees Fahrenheit

Remember that while temperature sensitivity is common with MS, any new or worsening symptoms should be discussed with your healthcare team to ensure proper management.

May 24, 2025
A MyMSTeam Member

I live in Florida. Hot weather all the time. I am dealing with this disease since I’m 22. I’m 66. The heat destroys me. I basically sit in the house all the time.

May 25, 2025
A MyMSTeam Member

Me too!!!

May 25, 2025 (edited)
A MyMSTeam Member

Hi @A MyMSTeam Member
Yes, I have big problems with temperature regulation. Slight temperature changes (up or down) have me freezing or burning. I am also very sensitive to barometric pressure changes, I can sense low pressure before it arrives! My MS neuro says it’s is due to lesions in area of brain that controls autonomic nervous system. It started couple of years ago, very painful and frustrating as I end up mainly staying indoors where I can control temperature etc.

May 25, 2025

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