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A MyMSTeam Member asked a question ๐Ÿ’ญ
San Francisco, CA

Had to get up > 3 times while sleeping because of neurogenic bladder

July 2, 2025
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A MyMSTeam Member

Try going to the restroom every 2 hours during the day and cut down on fluids shortly before bed

July 2, 2025
A MyMSTeam Member

I'm ALWAYS up 3x...@ least! Learning to live with it.๐Ÿ˜‰
..

July 2, 2025
MyMSTeam

Bladder dysfunction is a common challenge with MS. The bladder can spasm and contract, leading to frequent bathroom trips, urgency, and nighttime waking (nocturia). Sometimes the urethra can also contract, making it difficult to fully empty the bladder. Here are some strategies that may help reduce nighttime bathroom trips Show Full Answer

Bladder dysfunction is a common challenge with MS. The bladder can spasm and contract, leading to frequent bathroom trips, urgency, and nighttime waking (nocturia). Sometimes the urethra can also contract, making it difficult to fully empty the bladder. Here are some strategies that may help reduce nighttime bathroom trips:
- Empty your bladder completely before bed
- Limit caffeine and alcohol intake
- Consider bladder relaxation medications
- Talk to your doctor about muscle relaxants for nighttime use
- Use protective undergarments or liners for peace of mind

For severe cases, a urologist can discuss additional options like bladder stimulators (MRI compatible) or other medical interventions.

July 2, 2025
A MyMSTeam Member

Multiple Urologists at different times told me that I have neurogenic bladder. I tried Every pill. Bladder Botox (which worked for Me only one glorious day - But if it works for you it's heaven!); Pure wick at home might work for you if you sleep on your back. I also tried the Medtronic bladder stim, But I was told by my great baclofen pump surgeon (also Medtronic ) that their bladder stim does Not work for MS patients. Ugh! Found out After I had surgery to put it in and years later of it Not working to have surgery to remove it. My Urologist never shared that info- just got rich over it, with All of his patients. Anyway, try anything you can that might help. There are Many different pills you can try. Or changing drinking habits, etc.
Hope you find something to give you comfort my friend! Hugs!

July 2, 2025
A MyMSTeam Member

If I didn't self cath i will get UTI of the bladder because it doesn't fully empty.

July 6, 2025

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